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Found Results
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November 2022

Getting the NDIS back on track – A survey of people with disability

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Description:

The Summer Foundation, with the support of People with Disabilities Australia, conducted research into people with disability’s experience of the NDIS. The research was seeking to understand what works well in the NDIS, how it has made a difference to people’s lives and what they would change about the NDIS.
 
The research amplifies the voice of NDIS participants (and close others) and provides invaluable insight into the lived experience of dealing with the NDIS.
 
Key findings include:

  • The NDIS has transformed lives for the better and helped people achieve important life goals
  • There is a deep distrust and lack of confidence in the administration of the scheme
  • Many participants live in fear of their funding being cut due to policy change, miscommunication, or errors
  • Dealing with the NDIS is stressful and time consuming, and difficult to access

View the Research Summary


Citation:

Winkler, D., Brown, M., D’Cruz, K., Oliver, S., Mulherin, P. (2022). Getting the NDIS back on track: A survey of people with disability. Summer Foundation.


October 2022

Culture and Capability of the National Disability Insurance Agency – Summer Foundation submission to the Joint Standing Committee on the National Disability Insurance Scheme

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Description:

Summer Foundation developed a submission to the Joint Standing Committee on the NDIS on the capability and culture of the NDIA and the impacts on the experiences of NDIS participants.

 

The current culture and capability of the NDIA does not meet the needs of participants, but it can be improved. Through the Summer Foundation’s NDIS survey, participants reported that they live in fear of funding being cut, experience a lack of communication, collaboration and relationship building with the NDIA, as well as poor timeliness and efficiency.

 

Trust and confidence in the NDIS and the NDIA can only be restored if participants are seen as experts in their own lives. People with disability should be at the centre of all policies and solutions and included in any reform process through meaningful co-design. It is crucial that the NDIA works to strengthen choice and control for participants and builds their capacity to live well in the community.


Reasonable and Necessary with Dr George Making Sense of the NDIS

October 2022

Reasonable and Necessary podcast series

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Description:

Reasonably and Necessary: Making Sense of the NDIS is a podcast series by the Summer Foundation, hosted by our very own Dr George Taleporos.

Each podcast episode aims to simplify the NDIS for participants, their families and anyone supporting NDIS participants to work their way through the system.


October 2022

Home and Living decision-making – Policy Position Statement by the Summer Foundation

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Description:

Improving the experience and outcomes of NDIS participants, particularly around Home and Living supports, is a key focus of the NDIS. There have been a number of improvements and positive changes in the Home and Living space, including improved application processes and reports by the NDIA.  While there is still more to do to ensure straightforward and transparent processes to enable NDIS participants to access appropriate housing and supports, it is great to see the focus and positive traction from the NDIA. This position statement identifies a number of wins for the NDIA and participants.


August 2022

Value for money – Policy Position Statement by the Summer Foundation

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Description:

The National Disability Insurance Agency (NDIA) can point to value for money as a reason for not approving funding for any National Disability Insurance Scheme (NDIS) supports, however it appears to be more frequently used in housing and support decisions. Participants, their supporters and the sector report that value for money is not clearly understood, applied inconsistently and lacks transparency on how it is applied to individual plans. In line with NDIS legislation, the NDIA must consider long-term costs and benefits of supports as well as invest in capacity building measures that will reduce support costs over time.


August 2022

Summer Foundation – La Trobe University Research Program 2021/2022

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Description:

The Summer Foundation – La Trobe University Research Program is designed to understand the issue of young people in aged care. By researching the issues at each stage of the critical pathways that lead young people to aged care we can provide the evidence needed to create systems change that will solve this problem.


August 2022

NDIS impacts on South Australian participants with complex needs – Summer Foundation and Housing Hub submission to the Social Development Committee

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Description:

The Summer Foundation and the Housing Hub welcome the opportunity to make a joint submission to the Social Development Committee on National Disability Insurance Scheme (NDIS) impacts on South Australian participants with complex needs. Many South Australians depend on the NDIS to live an ordinary life. It is crucial that the NDIS strengthens the rights and choices of South Australian participants and builds their capacity to live independently and well in the community.


May 2022

Housing Delayed and Denied: NDIA Decision-Making on specialist disability accommodation funding

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Description:

In the past year, an increasing number of people have received SDA funding decisions that were not aligned with their needs and preferences.

 

In order to understand and engage with the SDA decision-making and appeals process, the Housing Hub and the Public Interest Advocacy Centre (PIAC) commenced a collaborative project in mid-2021, providing legal help to NDIS participants who are seeking reviews of SDA funding decisions at the Administrative Appeals Tribunal (AAT). This new report presents our early findings.


Citation:

Skipsey, M., Winkler, D., Cohen, M., Mulherin, P., Rathbone, A., & Efstathiou, M. (2022). Housing delayed and denied: NDIA decision-making on Specialist Disability Accommodation. Public Interest Advocacy Centre and Housing Hub.


DOCUMENT

January 2022

Pre Budget Submission (2022)

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Description:

More than 50 young people continue to enter aged care each month. Most young people enter aged care via hospital -they fall through the gap between the hospital and the disability sectors.
 
Additionally over 1,100 long stay NDIS participants are stuck in Australian hospitals at a cost of $860m per annum. People with disability remain in hospital for months after they are clinically ready for discharge because it takes the NDIA an average of 60 days to determine eligibility and allocate funding for supports in an NDIS plan. Funding for SDA can take much longer.
 
Many NDIS participants have to go to the Administrative Appeals Tribunal (AAT) to get the right SDA determination. This can take up to another year, costing the Federal Government $17 million per annum (reported by the NDIA) and causing undue stress to NDIS participants and their families.
 
Lack of disability housing is not the main barrier to hospital discharge. According to the NDIA, there are 3,000 vacancies in disability housing across Australia, 800 of which are new build SDA.
 
In 2016, the NDIS committed to providing $700 million per year to housing payments called SDA. Last year the NDIA only allocated 31% of the committed $700 million for SDA (the partial allocation of committed funding also occurred in prior years).
The Federal Government will not achieve its 2022 or 2025 YPIRAC Targets unless:
 

  • The NDIA steps up and matches the efficiency of the aged care system in the timely allocation of funding for housing and support, post receipt of all required evidence to make an SDA determination.
  • There is investment in better hospital discharge for people with severe disability


July 2021

Separation of Housing and Support – Policy Position Statement by the Summer Foundation

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Description:

The provision of housing and supports must be separated to avoid conflicts of interest. Many participants receive a mixture of Specialist Disability Accommodation (SDA), Supported Independent Living (SIL), support coordination and other supports from the same provider. This presents an inherent conflict of interest that brings risk to participant safety, compromises housing security and limits or removes a participant’s right to exercise genuine choice and control.

 

This can result in limitations of a participant’s rights to exercise choice and control, including the inability to raise concerns or change support providers without putting at risk other services and supports they receive.


March 2021

SDA eligibility criteria

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Description:

Specialist Disability Accommodation (SDA) is a costly support that will be provided to only a small number of NDIS participants, so the rules the NDIS uses to determine a participant’s eligibility are rigorously applied. To be considered for SDA, a participant must provide evidence to support EVERY criteria along one of the pathways in this flowchart.

For the exact wording of each rule, refer to the Summer Foundation’s How to write a housing plan resource.


January 2021

NDIS plan review

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Description:

Applying for an NDIS Plan review based on a change of circumstances (NDIS resource)


October 2020

Allied health housing assessments guide

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Description:

The aim of this guide is to assist support coordinators and allied health professionals collaborate on Housing Plans for National Disability Insurance Scheme (NDIS) participants. Housing Plans rely on appropriately framed allied health assessments and reports to support the participant pursue their goals and aspirations.


July 2020

UpSkill Fundamentals resources

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Description:

The UpSkill team have produced the following videos to capture the fundamentals of what you need to know when you are a support coordinator or private allied health professional. If you are attending any online or face-to-face UpSkill training, you should watch the UpSkill Fundamentals videos beforehand.


June 2020

NDIS foundations training videos

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Description:

These videos for health services are part of the NDIS Capacity building framework training manual.

  • Embedding Practice Change: Health Services and the NDIS
  • Introduction to the NDIS (Webinars 1–4)
  • NDIS Foundations (Modules 1–3)
  • Streamlining Health & NDIS for Better Discharge Outcomes


April 2020

Collaborative discharge approach – Practice guide

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Description:

The CDA Practice Guide details the steps involved in effective discharge planning for younger people under 65 with disability or complex support needs in hospital. It steps out collaborative actions between the NDIS, health, support coordination and housing, to facilitate timely discharge through access to necessary NDIS supports. Links to resources that align with specific actions are embedded within this guide.


April 2020

Collaborative discharge approach – An overview

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Description:

A Collaborative Discharge Approach (CDA) is a process to ensure that people under 65 with disability or complex support needs in hospital can achieve an effective and timely discharge back into the community with National Disability Insurance System (NDIS) supports.

This overview provides a snapshot of how health can work with support coordinators to achieve this and includes links to resources that align with specific actions.


March 2020

Accessing the NDIS – Providing supporting evidence

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Description:

When making an access request to the NDIS, the NDIA requires supporting evidence about the person’s disability and how it impacts their everyday life. Supporting evidence can be in the form of an Access Request Form (ARF), or a supporting evidence report. This resource provides an example of a supporting evidence report template that reflects the NDIS legislative requirements.


February 2020

Linda offers her advice on looking for SDA

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Description:

Linda explains clearly the steps involved when looking for SDA.
She highlights the impact on her son, Trevor and herself since
he moved into an SDA apartment.


December 2019

Lisa is moving out of aged care

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Description:

Lisa has lived in a nursing home for about 6 years. Her main goal was to get of the nursing home. Lisa shares how it feels to be preparing to move into an SDA apartment.


December 2019

Sam Shares ‘things that helped me move’

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Description:

Sam has moved from a group home into an SDA apartment. Sam would like to share with others things that helped this move. “We don’t know what we could be, but it is a lot more than they expect.”


October 2019

Introduction to the NDIS for health professionals

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Description:

This is a series of 4 webinars which cover the Introduction to the NDIS for health professionals.


August 2019

NDIS housing pathway

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Description:

On this resource we detail one pathway to mainstream housing. If you have searched for mainstream housing and discovered you can’t access it because of your disability, you can test your eligibility for SDA on the second page.


July 2019

SDA payments guide

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Description:

This guide explains what Specialist Disability Accommodation (SDA) payments are, who they are paid to and how they are accessed. For people who have SDA payments included in their NDIS Plan, it explains how to make the most of this funding.


July 2019

Looking for somewhere to live

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Description:

This guide explains how you can access and make the most of NDIS funding to look for housing. It explains the capacity building funding available to NDIS participants who need support to search for suitable housing. It also includes information on choosing your support coordinator and how to make the most of the funding.

Note that this guide replaces ‘Exploring Your Housing Options’.