disability support Archives - Summer Foundation
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May 2022

Moving to a new home checklist

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Description:

This checklist is written from the perspective of a person with a disability who is wanting to move to a new home. We know moving is a big task. There are many things to do, and many people may be involved in assisting a person with disability to move to a new home. This form might be completed by the person with disability and/or a trusted person such as a family member or support coordinator

 

Support coordinators and allied health professionals can learn more about supporting someone to move into a new home by attending our UpSkill workshop on this topic.


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May 2022

On-site shared support in Specialist Disability Accommodation – Discussion paper

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Description:

In 2021 the Summer Foundation held a series of workshops and interviews with on-site support providers, specialist disability accommodation (SDA) providers, and tenants living in SDA apartments. Preliminary findings from the workshops were published in May 2022, and the main findings were that there is scope for service redesign and innovation to improve the quality and efficiency of support.

We are seeking input from support providers for improving the preliminary report and recommendations. Please contact research@summerfoundation.org.au by 30 June 2022.


October 2021

UpSkill Provider Directory

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Description:

Find support coordinators and allied health professionals who are right for you.

The UpSkill Provider Directory gives you access to profiles of support coordinators and NDIS allied health professionals with a wide range of specific skills and experience. Each provider has completed UpSkill training with the Summer Foundation on topics such as how to help you navigate the NDIS, specialist disability accommodation, housing, leaving aged care and leaving hospital.


September 2021

Factors that influence the quality of paid disability support for adults with acquired neurological disability: Scoping review and preliminary interview findings

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Description:

Theoretically, individualised funding schemes empower people with disability (PWD) to choose high quality support services in line with their needs and preferences. Given the importance of support, the aim of the scoping review and in-depth interviews was to understand the factors that influence the quality of paid disability support for adults with acquired neurological disability from the perspective of PWD, close others and disability support workers (DSWs). A comprehensive scoping review of the published literature from 2009-2019 was conducted on five databases. In-depth interviews were conducted with people with acquired neurological disabilities, close others and DSWs to obtain their perspective on what influences the quality of paid disability support.


Citation:

Topping, M., Douglas, J., Winkler, D., (2021). Paper presented at the 6th Pacific Rim Conference of the International Neuropsychological Society, Australasian Society for the Study of Brain Impairment, and Australian Psychological Society’s College of Clinical Neuropsychologists.


September 2021

Choosing a support coordinator

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Description:

We have created a guide to help you choose a support coordinator. We have included ideas for important things you might want to know about your support coordinator, and questions you might want to ask them.


October 2020

Factors that influence the quality of paid support for adults with acquired neurological disability: Scoping review and thematic synthesis

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Description:

This review aims to understand the factors that influence the quality of paid disability support for adults with acquired neurological disability. The findings provide insights to PWD hiring and managing support, and facilitate the delivery of quality disability support.


Citation:

Topping, M., Douglas, J., and Winkler, D. (2020). Disability and Rehabilitation.


June 2020

Chris’s story – everything’s changed

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Description:

Chris shares his journey from hospital to his new home and the value of having good support around you.


May 2020

Personal protective equipment needs of NDIS participants during COVID-19: Preliminary results

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Description:

People with disability, especially those with underlying medical conditions, are disproportionately vulnerable during COVID-19. A national survey conducted in April 2020 obtained the perspective of 351 National Disability Insurance Scheme (NDIS) participants on their personal protective equipment (PPE) needs. The 30 question survey was designed to inform a national strategy to source PPE and provide an accessible distribution pathway to NDIS participants.


Citation:

Winkler, D., Douglas, J., Rinehart, N., Jamwal, R., Bishop, G., and Jarman, H. (2020). Summer Foundation.


February 2020

Living independently ‘Trevor chooses how he wants to live’

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Description:

Linda, Trevor’s Mum, shares how Trevor’s life has changed since he chose to live independently with support in an SDA apartment.


January 2020

Sharing stories of lived experience: A qualitative analysis of the intersection of experiences between storytellers with acquired brain injury and storytelling facilitators

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Description:

Sharing stories of lived experience of disability presents an opportunity for meaningful occupational engagement, enabling social connectedness and contribution to society. This paper reports on the intersection of experiences between those sharing their story and those listening to the story.


Citation:

D’Cruz, K., Douglas, J., and Serry, T. (2020). British Journal of Occupational Therapy 83(9): 576-584.


December 2019

Understanding the factors that influence the quality of paid disability support for adults with acquired neurological disability and complex needs: A scoping review protocol

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Description:

Adults with complex needs often require paid support to enable them to exercise choice and control and participate fully and effectively in society. Given support is so critical for this population, this review aims to further understand the factors that influence the quality of paid disability support for adults with acquired neurological disability and complex needs.


Citation:

Topping, M., Douglas, J., and Winkler, D. (2019). BMJ Open.


October 2019

Ben’s journey to independence

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Cheryl and Gary describe their son, Ben’s journey to independence.


April 2019

Kirby’s SDA journey to her new home

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Kirby finally has her own space again, making her own choices. See how SDA has helped Kirby’s dream to live independently again in her own home.


December 2018

What is a support coordinator?

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Linda Rossow, Independent Support Coordinator, explains her role as a support coordinator and what this means for the participants she works with.


December 2018

Support coordination: Exploring housing options

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Linda Rossow, Independent Support Coordinator, talks about the process she works through with participants who want to find somewhere different to live.


August 2018

Michael’s NDIS story

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Description:

Connecting with the NDIS has been a long and complicated journey for Michael. By sharing his story he is hoping it will help others with disability trying to navigate the system. Story filmed in Nov 2017.


August 2018

I’m a person before a disability – Karen’s Story

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Karen loves spending time with friends and family, but socialising is complicated when you now live an hour and a half away. Karen is hoping her story can help others.


July 2018

Masoud’s story

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Description:

The story of the strong bond between brothers. Edris’ main goal for his brother, Masoud, is for him to move out of aged care. Edris is hoping the NDIS will assist with this.


June 2018

Deborah’s NDIS story

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It’s been a bumpy road, but the NDIS is making a world of difference for Deborah.


November 2017

Tanya’s story

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Tanya’s love and passionate advocacy for her husband has led to the life Simon is able to live today.


November 2017

A digital story by Cheryl & Gary Parkinson

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Description:

The motive to look for alternative accommodation for their son was two-fold: For Ben, it was about his independence; for Gary and Cheryl, it was about who would look after Ben in the future.


November 2017

Amy’s story

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Description:

Amy describes moving into her new supported accommodation as the biggest life-changing event since the onset of her disability.


December 2016

Living like everyone else

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Description:

This comprehensive guide explains 24-hour support options for people with disability and complex needs, detailing how people can live more independently in their own homes. By coordinating factors such as housing location, design, advanced communication and environmental control technology – together with new ways of delivering support – best practice 24- hour support doesn’t need to involve a continual staff presence