A+
large
A
small
invert
colour
Group 3
reset
Found Results
Page of

November 2022

“Let the people you’re supporting be how you learn”: a grounded theory study on quality support from the perspective of disability support workers

Tags:


Description:

Quality disability support is fundamental to the lives of many adults with acquired neurological disability. However, little is known about the factors that influence the quality of paid support. This study is part of a larger project to develop a holistic understanding of quality support, grounded in the experience of people with acquired neurological disability, close others, and disability support workers. The current study focuses on the support worker perspective. This study found that critical to quality support is centring the needs and preferences of people with disability, improving support worker working conditions and supporting people with disability and support workers to build effective, balanced working relationships.


Citation:

Topping, M., Douglas, J., Winkler, D. (2022). “Let the people you’re supporting be how you learn”: A grounded theory study on quality support from the perspective of disability support workers. Disability and Rehabilitation


November 2022

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

Tags: ,


Description:

For people with acquired neurological disabilities and complex needs, general practitioners (GPs) play an important role in health management and early intervention for the prevention of comorbidities and health complications. People with disability are a vulnerable group who need and have the right to, quality general practice services. It is therefore important to understand the health needs and service use of this group. The aim of this review was to identify the healthcare needs and general practice utilization of people with acquired neurological disabilities and complex needs.

This paper found that people with acquired neurological disabilities and complex needs were vulnerable to receiving suboptimal healthcare. The literature highlighted issues regarding the accessibility of services, the fragmentation of health services and inadequate preventative care. GPs were challenged to offer adequate disability‐related expertise and to meet the mental health needs of people with disability within time constraints.


Citation:

Oliver, S., Douglas, J., Winkler, D., Pearce, C., Minter, E., Jarman, H. K., and Topping, M. (2022). The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review. Health Expectations


October 2022

Preventing and better protecting younger people with complex needs from experiencing violence, abuse, neglect and exploitation

Tags: ,


Description:

Summer Foundation report to the Disability Royal Commission
There are many younger people with complex needs living in inappropriate settings such as residential aged care (RAC) and hospitals. Recent government inquiries have provided opportunities for defining and measuring progress towards essential reforms. However, more still needs to be done to improve the experiences and outcomes of younger people with complex needs. To help ensure the Disability Royal Commission (DRC) is best placed to drive policy reform that will meaningfully improve outcomes for this cohort, this report summarises the key areas in need of action.


report cover

October 2022

Providing an evidence base for Home and Living decisions – A survey of occupational therapists

Tags: , , ,


Description:

The Summer Foundation and Occupational Therapy Australia conducted a survey in July 2022 to explore the role of OTs in helping NDIS participants request SDA funding. The aim was to understand the functional assessment and report-writing process from the OT perspective and provide actionable insights to the NDIA.
 
Key Findings include:

  1. Clear, concise and rigorous OT reports have the potential to help NDIS participants with the highest levels of needs secure adequate funding for housing and support, including funding for specialist disability accommodation (SDA)
  2. However, there is currently very limited information about what evidence the NDIA needs from OT reports to make informed, timely and accurate decisions.
    Occupational therapists need to know what the NDIA thinks a ‘good’ functional assessment report looks like to help NDIS participants provide evidence for Home and Living decisions.


Citation:

Winkler, D., D’Cruz, K., Minter, E., Mulherin, P. (2022). Providing an evidence base for Home and Living decisions: A survey of occupational therapists writing functional assessment reports for NDIS participants. Summer Foundation.


October 2022

‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: a scoping review protocol

Tags: ,


Description:

Community integration and social participation remain a challenge for many individuals following acquired brain injury (ABI) and the transition from hospital to home is a complex journey. It is important to conceptualise this transition from the perspective of people with ABI, to inform future research with the overall aim of improving the experience of community re-engagement and maintaining important relationships within social networks. This article provides the protocol for a study that will review existing literature to support conceptualisation of community participation from those who have experienced the transition to the community following discharge from hospital.


Citation:

Currie, S., Douglas, J., and Winkler, D. (2022). ‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: A scoping review protocol. BMJ Open.


August 2022

Summer Foundation – La Trobe University Research Program 2021/2022

Tags: , , , ,


Description:

The Summer Foundation – La Trobe University Research Program is designed to understand the issue of young people in aged care. By researching the issues at each stage of the critical pathways that lead young people to aged care we can provide the evidence needed to create systems change that will solve this problem.


journal cover

August 2022

Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers

Tags: , , , , ,


Description:

This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was piloted with five primary participants with acquired brain injury and cognitive and communication impairments, five close other supporters and five facilitators. Analysis of interview data revealed the PLV to be a person-centred experience for primary participants that was structured around sense of self and included having a voice and taking control in directing their lives, personal growth through participation and feeling validated through the experience. The production and use of PLV training resources has much potential to improve the delivery of support and maximise support outcomes by enabling people with cognitive and communication impairments to have choice and control, set their own goals and direct their supports.


Citation:

Douglas, J., D’Cruz, K., Winkler, D., Topping, M., Bucolo, C., & Finis, C. (2022). Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers. Health & Social Care in the Community, 00, 1–12.


July 2022

A more inclusive and just society for people with disability – Summer Foundation submission to the Disability Royal Commission

Tags: ,


Description:

The Summer Foundation welcomes the opportunity to make a submission to the Disability Royal Commission (DRC). It is crucial that outcomes of the DRC ensure a more inclusive and just society for all people with disability. Despite state, national and international mandates, many people with disability with high and complex needs are still not afforded their rights. They are often denied the opportunity to live where, how and with whom they want.

 

Significant reforms to the NDIS and health and housing interface systems are needed to uphold participants’ choice and control over their own lives and break the cycle of violence, abuse, neglect and exploitation when they are dependent on supports provided by others. Greater investment into person-centred decision-making is essential to ensure that participants can exercise their right to an ordinary life.


July 2022

ACT Disability Strategy 2022-2032 – Summer Foundation submission to the ACT Disability Reference Group

Tags:


Description:

The Summer Foundation welcomes the opportunity to make a submission to the ACT Disability Reference Group on the ACT Disability Strategy. It is crucial that the ACT Disability Strategy ensures an accessible community that improves the lives of more than 80,000 people with disability living in Canberra. To achieve this, it must strengthen the rights and choices of Canberrans with disability and build their capacity to live a good life.


July 2022

“They treat you like a person, they ask you what you want”: a grounded theory study of quality paid disability support for adults with acquired neurological disability

Tags:


Description:

Support workers provide assistance across a range of activities, including daily and domestic living tasks, employment, housing and community participation. However, in Australia the support workforce is heavily casualised and under-trained, which can have negative impacts for people with disability. Furthermore, there is a lack of evidence on what constitutes ‘best practice’ in the area of disability support. New findings from interviews reveal the most important qualities of a ‘good’ support worker, which should be used to inform future policy and practice in the area.

 

You can read a summary here.

 


Citation:

Topping, M., Douglas, J., & Winkler, D. (2022). “They treat you like a person, they ask you what you want”: A grounded theory study of quality paid disability support for adults with acquired neurological disability. Disability and Rehabilitation.


May 2022

Moving to a new home checklist

Tags: ,


Description:

This checklist is written from the perspective of a person with a disability who is wanting to move to a new home. We know moving is a big task. There are many things to do, and many people may be involved in assisting a person with disability to move to a new home. This form might be completed by the person with disability and/or a trusted person such as a family member or support coordinator

 

Support coordinators and allied health professionals can learn more about supporting someone to move into a new home by attending our UpSkill workshop on this topic.


Report thumbnail

May 2022

On-site shared support in Specialist Disability Accommodation – Discussion paper

Tags: , ,


Description:

In 2021 the Summer Foundation held a series of workshops and interviews with on-site support providers, specialist disability accommodation (SDA) providers, and tenants living in SDA apartments. Preliminary findings from the workshops were published in May 2022, and the main findings were that there is scope for service redesign and innovation to improve the quality and efficiency of support.

We are seeking input from support providers for improving the preliminary report and recommendations. Please contact [email protected] by 30 June 2022.


October 2021

UpSkill Provider Directory

Tags: , , ,


Description:

Find support coordinators and allied health professionals who are right for you.

The UpSkill Provider Directory gives you access to profiles of support coordinators and NDIS allied health professionals with a wide range of specific skills and experience. Each provider has completed UpSkill training with the Summer Foundation on topics such as how to help you navigate the NDIS, specialist disability accommodation, housing, leaving aged care and leaving hospital.


September 2021

Factors that influence the quality of paid disability support for adults with acquired neurological disability: Scoping review and preliminary interview findings

Tags:


Description:

Theoretically, individualised funding schemes empower people with disability (PWD) to choose high quality support services in line with their needs and preferences. Given the importance of support, the aim of the scoping review and in-depth interviews was to understand the factors that influence the quality of paid disability support for adults with acquired neurological disability from the perspective of PWD, close others and disability support workers (DSWs). A comprehensive scoping review of the published literature from 2009-2019 was conducted on five databases. In-depth interviews were conducted with people with acquired neurological disabilities, close others and DSWs to obtain their perspective on what influences the quality of paid disability support.


Citation:

Topping, M., Douglas, J., Winkler, D., (2021). Factors that influence the quality of paid disability support for adults with acquired neurological disability scoping review and preliminary interview findings. Paper presented at the 6th Pacific Rim Conference of the International Neuropsychological Society, Australasian Society for the Study of Brain Impairment, and Australian Psychological Society’s College of Clinical Neuropsychologists.


September 2021

Choosing a support coordinator

Tags: , ,


Description:

We have created a guide to help you choose a support coordinator. We have included ideas for important things you might want to know about your support coordinator, and questions you might want to ask them.


October 2020

Factors that influence the quality of paid support for adults with acquired neurological disability: Scoping review and thematic synthesis

Tags:


Description:

This review aims to understand the factors that influence the quality of paid disability support for adults with acquired neurological disability. The findings provide insights to PWD hiring and managing support, and facilitate the delivery of quality disability support.


Citation:

Topping, M., Douglas, J., and Winkler, D. (2020). Disability and Rehabilitation.


June 2020

Chris’s story – everything’s changed

Tags: , ,


Description:

Chris shares his journey from hospital to his new home and the value of having good support around you.


May 2020

Personal protective equipment needs of NDIS participants during COVID-19: Preliminary results

Tags:


Description:

People with disability, especially those with underlying medical conditions, are disproportionately vulnerable during COVID-19. A national survey conducted in April 2020 obtained the perspective of 351 National Disability Insurance Scheme (NDIS) participants on their personal protective equipment (PPE) needs. The 30 question survey was designed to inform a national strategy to source PPE and provide an accessible distribution pathway to NDIS participants.


Citation:

Winkler, D., Douglas, J., Rinehart, N., Jamwal, R., Bishop, G., and Jarman, H. (2020). Summer Foundation.


February 2020

Living independently ‘Trevor chooses how he wants to live’

Tags: , ,


Description:

Linda, Trevor’s Mum, shares how Trevor’s life has changed since he chose to live independently with support in an SDA apartment.


January 2020

Sharing stories of lived experience: A qualitative analysis of the intersection of experiences between storytellers with acquired brain injury and storytelling facilitators

Tags:


Description:

Sharing stories of lived experience of disability presents an opportunity for meaningful occupational engagement, enabling social connectedness and contribution to society. This paper reports on the intersection of experiences between those sharing their story and those listening to the story.


Citation:

D’Cruz, K., Douglas, J., and Serry, T. (2020). British Journal of Occupational Therapy 83(9): 576-584.


December 2019

Understanding the factors that influence the quality of paid disability support for adults with acquired neurological disability and complex needs: A scoping review protocol

Tags:


Description:

Adults with complex needs often require paid support to enable them to exercise choice and control and participate fully and effectively in society. Given support is so critical for this population, this review aims to further understand the factors that influence the quality of paid disability support for adults with acquired neurological disability and complex needs.


Citation:

Topping, M., Douglas, J., and Winkler, D. (2019). BMJ Open.


October 2019

Ben’s journey to independence

Tags: , ,


Description:

Cheryl and Gary describe their son, Ben’s journey to independence.


April 2019

Kirby’s SDA journey to her new home

Tags: , , ,


Description:

Kirby finally has her own space again, making her own choices. See how SDA has helped Kirby’s dream to live independently again in her own home.


December 2018

What is a support coordinator?

Tags: , , ,


Description:

Linda Rossow, Independent Support Coordinator, explains her role as a support coordinator and what this means for the participants she works with.


December 2018

Support coordination: Exploring housing options

Tags: , , ,


Description:

Linda Rossow, Independent Support Coordinator, talks about the process she works through with participants who want to find somewhere different to live.