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November 2022

The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review

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Description:

For people with acquired neurological disabilities and complex needs, general practitioners (GPs) play an important role in health management and early intervention for the prevention of comorbidities and health complications. People with disability are a vulnerable group who need and have the right to, quality general practice services. It is therefore important to understand the health needs and service use of this group. The aim of this review was to identify the healthcare needs and general practice utilization of people with acquired neurological disabilities and complex needs.

This paper found that people with acquired neurological disabilities and complex needs were vulnerable to receiving suboptimal healthcare. The literature highlighted issues regarding the accessibility of services, the fragmentation of health services and inadequate preventative care. GPs were challenged to offer adequate disability‐related expertise and to meet the mental health needs of people with disability within time constraints.


Citation:

Oliver, S., Douglas, J., Winkler, D., Pearce, C., Minter, E., Jarman, H. K., and Topping, M. (2022). The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs: A scoping review. Health Expectations


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August 2022

Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers

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Description:

This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was piloted with five primary participants with acquired brain injury and cognitive and communication impairments, five close other supporters and five facilitators. Analysis of interview data revealed the PLV to be a person-centred experience for primary participants that was structured around sense of self and included having a voice and taking control in directing their lives, personal growth through participation and feeling validated through the experience. The production and use of PLV training resources has much potential to improve the delivery of support and maximise support outcomes by enabling people with cognitive and communication impairments to have choice and control, set their own goals and direct their supports.


Citation:

Douglas, J., D’Cruz, K., Winkler, D., Topping, M., Bucolo, C., & Finis, C. (2022). Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers. Health & Social Care in the Community, 00, 1–12.


August 2022

NDIS impacts on South Australian participants with complex needs – Summer Foundation and Housing Hub submission to the Social Development Committee

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Description:

The Summer Foundation and the Housing Hub welcome the opportunity to make a joint submission to the Social Development Committee on National Disability Insurance Scheme (NDIS) impacts on South Australian participants with complex needs. Many South Australians depend on the NDIS to live an ordinary life. It is crucial that the NDIS strengthens the rights and choices of South Australian participants and builds their capacity to live independently and well in the community.


April 2020

Collaborative discharge approach – An overview

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Description:

A Collaborative Discharge Approach (CDA) is a process to ensure that people under 65 with disability or complex support needs in hospital can achieve an effective and timely discharge back into the community with National Disability Insurance System (NDIS) supports.

This overview provides a snapshot of how health can work with support coordinators to achieve this and includes links to resources that align with specific actions.


December 2019

Sam Shares ‘things that helped me move’

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Description:

Sam has moved from a group home into an SDA apartment. Sam would like to share with others things that helped this move. “We don’t know what we could be, but it is a lot more than they expect.”


November 2019

Shanais living independently in an SDA Apartment

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Description:

Shanais describes how life changing it is to be living independently in an accessible apartment in Melbourne.


December 2018

What is a support coordinator?

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Description:

Linda Rossow, Independent Support Coordinator, explains her role as a support coordinator and what this means for the participants she works with.


April 2018

Getting the language right

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Description:

How to write effective support documentation for people with disabilities and complex health and support needs seeking access to the NDIS.


February 2018

Establishing Effective SDA Projects

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Description:

This document shares the practical elements of what is involved in creating housing projects that are suitable for people with complex needs and eligible for Specialist Disability Accommodation (SDA) payments. The report provides an overview and checklist for six stages of delivering SDA projects.


January 2018

A successful transition to more independent living

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Description:

This report sets out the current understanding of what is required to support a tenant with complex support needs to successfully transition to living in their new home, pursuing their goals and aspirations with as much independence and confidence as possible.


December 2016

Living like everyone else

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Description:

This comprehensive guide explains 24-hour support options for people with disability and complex needs, detailing how people can live more independently in their own homes. By coordinating factors such as housing location, design, advanced communication and environmental control technology – together with new ways of delivering support – best practice 24- hour support doesn’t need to involve a continual staff presence