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November 2023
Tags: aged care, residential aged care (RAC), YPIRAC
Description:
The Federal Government is developing a new Aged Care Act to replace existing legislation. The Summer Foundation welcomes the proposed change that “apart from First Nations persons, or people at risk of homelessness, no other younger persons will be able to access funded aged care services.”
A sustainable solution to the issue of young people in residential aged care (YPIRAC) requires completely closing the door to aged care for younger people.
These amendments are a vital part of important aged care reforms, as recommended by the Aged Care Quality and Safety Commission. Rather than using aged care as the provider of last resort, public money should be put to better use to fix gaps and failures in disability, health and housing service systems and develop alternative pathways that enable people under 65 to live in the community.
November 2023
Tags: aged care, residential aged care (RAC), YPIRAC
Description:
Addressing the level and scope of violence, abuse, neglect and exploitation evidenced in the Disability Royal Commission’s final report is a monumental task. It is critical that the people with disability who gave so much to the DRC benefit from some quick wins as well as see tangible actions to address some of the more complex and systemic challenges.
The emphasis on inclusive housing and inclusive lives in the final report is welcomed. Social connection and access to the community reduces the risk of violence, abuse, neglect and exploitation.
Federal, state and territory governments need to partner with people with disability and the sector to build on existing work and evidence, rather than duplicating efforts. To quote the DRC’s final report, real solutions need to reimagine these systems “in partnership with people with disability, with their voices at the centre of reforms.”
May 2023
Tags: NDIS
Description:
The NDIS assists participants to live independently by funding home and living supports that provide choice and control over where, how and with whom to live. However, many participants experience difficulties in accessing suitable housing and supports and have lost trust in the delivery of these services. The NDIA, state and territory governments and the disability sector need to work together to streamline processes and ensure good outcomes for people with disability. Shorter wait times and increased access to appropriate housing and supports will enable a greater quality of life, independence and connection to community.
May 2023
Tags: NDIS
Description:
The NDIS Review opened a public inquiry into improving the NDIS Quality and Safeguarding Framework. The Summer Foundation’s submission focuses on the quality of support provided within shared models of SDA. An improved Framework facilitates genuine choice for participants and the ability to exercise their rights in a shared living environment.
March 2023
Tags: housing
Description:
NDIS participants waiting to move into their long-term housing. MTA has the potential to be a useful part of the solution to divert people away from aged care, hospital and other inappropriate settings. However, currently it is difficult to access, lacks quality standards and is poorly understood by participants and the sector. Along with timely and accurate decisions on long-term housing and support, MTA can be part of a larger solution that supports people with disability to have choice and control over their lives.
March 2023
Description:
Younger people with disability are not getting the skilled support they need to leave or avoid residential aged care. Active collaboration is needed between all levels of government and the disability sector to ensure no younger person is forced to enter or remain in aged care. Addressing the systemic barriers to good housing and support in the community requires increased understanding of younger people with complex support needs and improved information and support around housing and support options that ensure greater outcomes for people with disability.
February 2023
Description:
While the number of younger people entering RAC over the past 2 years has decreased, in the last financial year 497 people under 65 entered aged care. The Morrison Government’s YPIRAC initiative did not create the systemic change needed.
Instead of going to RAC, younger people with disability are getting stuck in hospital for months. Younger people at risk of RAC need timely and skilled support to transition out of hospital into age-appropriate housing.
A solution can be found through access to high quality capacity building and support for NDIS participants. There is inadequate support and information provided to NDIS participants to explore options which meet their needs. There is also insufficient demand activation which inhibits the development of housing and support options for YPIRAC and younger people at risk of RAC.
The Summer Foundation has identified 4 initiatives that will address this gap and together will solve the issue of YPIRAC once and for all, described in Summer Foundation’s Pre-Budget Submission here.
October 2022
Tags: NDIS
Description:
Summer Foundation developed a submission to the Joint Standing Committee on the NDIS on the capability and culture of the NDIA and the impacts on the experiences of NDIS participants.
The current culture and capability of the NDIA does not meet the needs of participants, but it can be improved. Through the Summer Foundation’s NDIS survey, participants reported that they live in fear of funding being cut, experience a lack of communication, collaboration and relationship building with the NDIA, as well as poor timeliness and efficiency.
Trust and confidence in the NDIS and the NDIA can only be restored if participants are seen as experts in their own lives. People with disability should be at the centre of all policies and solutions and included in any reform process through meaningful co-design. It is crucial that the NDIA works to strengthen choice and control for participants and builds their capacity to live well in the community.
October 2022
Tags: YPIRAC
Description:
The Federal Government’s Younger People in Residential Aged Care (YPIRAC) Strategy aims to address the systemic issues and barriers that continue to allow younger people (under 65) to enter and remain in RAC. Although progress under the YPIRAC Strategy has been made, systems change is needed to ensure younger people with complex needs have access to the long-term housing and supports they need to live well in the community. Achieving the YPIRAC Strategy requires commitment at all levels of government and the implementation of policy and operational measures that improve the disability/health/housing interface.
October 2022
Tags: disability support, YPIRAC
Description:
Summer Foundation report to the Disability Royal Commission
There are many younger people with complex needs living in inappropriate settings such as residential aged care (RAC) and hospitals. Recent government inquiries have provided opportunities for defining and measuring progress towards essential reforms. However, more still needs to be done to improve the experiences and outcomes of younger people with complex needs. To help ensure the Disability Royal Commission (DRC) is best placed to drive policy reform that will meaningfully improve outcomes for this cohort, this report summarises the key areas in need of action.
October 2022
Description:
Improving the experience and outcomes of NDIS participants, particularly around Home and Living supports, is a key focus of the NDIS. There have been a number of improvements and positive changes in the Home and Living space, including improved application processes and reports by the NDIA. While there is still more to do to ensure straightforward and transparent processes to enable NDIS participants to access appropriate housing and supports, it is great to see the focus and positive traction from the NDIA. This position statement identifies a number of wins for the NDIA and participants.
August 2022
Tags: NDIS
Description:
The National Disability Insurance Agency (NDIA) can point to value for money as a reason for not approving funding for any National Disability Insurance Scheme (NDIS) supports, however it appears to be more frequently used in housing and support decisions. Participants, their supporters and the sector report that value for money is not clearly understood, applied inconsistently and lacks transparency on how it is applied to individual plans. In line with NDIS legislation, the NDIA must consider long-term costs and benefits of supports as well as invest in capacity building measures that will reduce support costs over time.
July 2022
Tags: disability support, royal commission
Description:
The Summer Foundation welcomes the opportunity to make a submission to the Disability Royal Commission (DRC). It is crucial that outcomes of the DRC ensure a more inclusive and just society for all people with disability. Despite state, national and international mandates, many people with disability with high and complex needs are still not afforded their rights. They are often denied the opportunity to live where, how and with whom they want.
Significant reforms to the NDIS and health and housing interface systems are needed to uphold participants’ choice and control over their own lives and break the cycle of violence, abuse, neglect and exploitation when they are dependent on supports provided by others. Greater investment into person-centred decision-making is essential to ensure that participants can exercise their right to an ordinary life.
July 2022
Tags: hospital discharge, housing
Description:
People with disability who have high and complex needs often get stuck in hospital due to challenges accessing the housing and support needed to leave hospital. The transition from hospital to home requires a coordinated approach between the NDIS and health and housing sectors. Enabling access to appropriate housing and supports when participants are clinically fit for discharge prevents disruptions to patient flow and poor health outcomes stemming from extended hospital stays.
July 2022
Tags: accessible housing, housing
Description:
Research supports incorporating accessible design features in the construction of all homes. The Summer Foundation urges State and Territory Governments to commit to improving housing accessibility so people with disability have more options for where they can live.
Only 5% of new home builds over the past decade have complied with current accessibility standards, meaning tens of thousands of Australians with disability are unable to access housing that meets their needs.
May 2022
Tags: disability support, Specialist Disability Accommodation (SDA), Supported Independent Living (SIL)
Description:
In 2021 the Summer Foundation held a series of workshops and interviews with on-site support providers, specialist disability accommodation (SDA) providers, and tenants living in SDA apartments. Preliminary findings from the workshops were published in May 2022, and the main findings were that there is scope for service redesign and innovation to improve the quality and efficiency of support.
We are seeking input from support providers for improving the preliminary report and recommendations. Please contact [email protected] by 30 June 2022.
April 2022
Tags: Supported Independent Living (SIL)
Description:
The Summer Foundation has released a position statement on the costs of Supported Independent Living (SIL) and its impact on the operation of the National Disability Insurance Scheme (NDIS). The costs of SIL are an outsized contributor to NDIS budget growth, which is impacting home and living determinations made by the National Disability Insurance Agency (NDIA), particularly Specialist Disability Accommodation (SDA). The cost effectiveness of SIL can be improved by maximising NDIS participants’ independence through accessible design and collaborative care or shared support models, thereby reducing the dependence on paid support staff.
January 2022
Tags: hospital discharge, housing, NDIS
Description:
More than 50 young people continue to enter aged care each month. Most young people enter aged care via hospital -they fall through the gap between the hospital and the disability sectors.
Additionally over 1,100 long stay NDIS participants are stuck in Australian hospitals at a cost of $860m per annum. People with disability remain in hospital for months after they are clinically ready for discharge because it takes the NDIA an average of 60 days to determine eligibility and allocate funding for supports in an NDIS plan. Funding for SDA can take much longer.
Many NDIS participants have to go to the Administrative Appeals Tribunal (AAT) to get the right SDA determination. This can take up to another year, costing the Federal Government $17 million per annum (reported by the NDIA) and causing undue stress to NDIS participants and their families.
Lack of disability housing is not the main barrier to hospital discharge. According to the NDIA, there are 3,000 vacancies in disability housing across Australia, 800 of which are new build SDA.
In 2016, the NDIS committed to providing $700 million per year to housing payments called SDA. Last year the NDIA only allocated 31% of the committed $700 million for SDA (the partial allocation of committed funding also occurred in prior years).
The Federal Government will not achieve its 2022 or 2025 YPIRAC Targets unless:
October 2021
October 2021
Tags: submission
Description:
The Summer Foundation welcomes the opportunity to contribute to the National Disability Insurance Agency’s (NDIA) consultation into Supports for Decision Making.Our submission responds to the key themes in the consultation paper and makes recommendations to uphold human rights and increase participant choice and control over their lives.The proposed Supports for Decision Making Policy is a significant step towards securing better outcomes for National Disability Insurance Scheme(NDIS) participants. A person-centred and supportive approach to participants and their decision supporters is essential to stop younger people with disability from being forced into Residential Aged Care (RAC) and to meet the outcomes outlined in the Younger People in Residential Aged Care Action Plan.
Our submission responds to the key themes in the consultation paper and makes recommendations to uphold human rights and increase participant choice and control over their lives.
October 2021
Tags: for policy makers, Supported Independent Living (SIL)
Description:
The Summer Foundation has released a position statement about the model of housing and support known as, closed setting supported independent living (SIL) homes. This is where the SIL provider owns or head leases a property and is responsible for tenancy management as well as SIL support delivery within the home. The closed setting SIL home model is outdated and does not resemble a contemporary approach to independent living but it is currently responding to demand for housing from NDIS participants who have been deemed ineligible for SDA or are facing SDA approval issues. The model brings risk to NDIS participant safety, compromises housing security and removes a participants right to exercise genuine choice and control.
The Summer Foundation believes that the NDIS Quality and Safeguards Commission must undertake a quality audit of existing closed-setting SIL homes and implement a regulatory framework as an interim measure, supporting SIL providers to conform to contemporary standards that uphold NDIS participants’ legal rights.
The NDIA must ensure SDA eligible participants do not live in, or are not reliant on, closed setting SIL homes.
July 2021
Tags: for policy makers, hospital discharge
Description:
Immediate action is needed to improve outcomes for people with complex disability. Significant reforms of the National Disability Insurance Scheme (NDIS) and health interface systems are needed to reduce unnecessary hospital stays and to prevent younger people with high and complex disabilities from being forced into unsuitable housing and support such as residential aged care (RAC).
Hospital discharge delays have compounding negative consequences for NDIS participants (hereafter referred to as ‘participant’ or ‘participants’) and families, NDIS and health systems, and the workers within these systems. Improvements in hospital discharge will reduce costs for both the NDIS and health systems and help fulfil the Younger People in Residential Aged Care Action Plan of no younger person (under the age of 65) living in RAC unless there are exceptional circumstances.
This report examines the various problems and solutions specific to the NDIS and health interface to minimise extended hospital stays and increase successful returns to community life for people with disabilities.
July 2021
Description:
The provision of housing and supports must be separated to avoid conflicts of interest. Many participants receive a mixture of Specialist Disability Accommodation (SDA), Supported Independent Living (SIL), support coordination and other supports from the same provider. This presents an inherent conflict of interest that brings risk to participant safety, compromises housing security and limits or removes a participant’s right to exercise genuine choice and control.
This can result in limitations of a participant’s rights to exercise choice and control, including the inability to raise concerns or change support providers without putting at risk other services and supports they receive.
June 2021
Tags: housing, NDIS Housing Options, Specialist Disability Accommodation (SDA)
Description:
Specialist Disability Accommodation (SDA) in Thin Markets resource identifies challenges and barriers to delivering SDA in thin markets. It explains the role that housing providers, disability support providers and all members of the community play in shaping opportunities for people with disability. The resource focuses on rural and remote areas in Western Australia and Queensland, Robust SDA and the impact the lack of SDA has on other mainstream systems.
March 2021
Tags: for policy makers
Description:
The Summer Foundation has made a submission to the Joint Standing Committee on the National Disability Insurance Scheme (NDIS) inquiry into Independent Assessments.
We believe that the NDIS is an important and life changing government initiative that has the potential to solve the issue of younger people being forced into residential aged care and other inappropriate accommodation settings.
While we welcome the introduction of free and timely assessments for people stuck in hospital, we recommend postponing the proposed midyear rollout of independent assessments and implementing an evidence-based pilot, codesigned with people with disability, disability organisations and other experts in the field.
January 2021
Tags: for policy makers
Description:
National Disability Insurance Scheme (NDIS) participants with high and complex needs can often experience difficulty in accessing high quality and effective support coordination. Without effective support coordination, it can be difficult to avoid or exit residential aged care (RAC). This position statement outlines the problems and what needs to change.
To discuss this further and to lend your support to our statement contact: [email protected]
January 2021
Tags: for policy makers
Description:
Funding for Medium-Term Accommodation (MTA) under the National Disability Insurance Scheme (NDIS) is not currently delivering the necessary outcomes for participants with high and complex needs. Changes are needed to ensure that this group receives the necessary support to avoid being stuck in hospital or forced into residential aged care (RAC).
This position statement outlines the problems and what needs to change. To discuss this further and to lend your support to our statement contact: [email protected]
October 2020
Tags: for policy makers, NDIS participant, Supported Independent Living (SIL)
Description:
The Summer Foundation has extensive experience working alongside people with high and complex support needs to understand how to ensure that housing and support solutions can be developed according to their needs and preferences. We have undertaken demonstration projects and extensive research. Based on the outcomes of the research our understanding of what it takes to effectively support people with complex needs to live in the community has evolved.
Drawing on this, the Summer Foundation has outlined key problems with the current dominant SIL practice and set out a vision for a reformed SIL market.
October 2020
Tags: for policy makers
Description:
The Melbourne Disability Institute (MDI) and the Summer Foundation are pleased to provide this supplementary information following our meeting with representatives from the Australian Building Codes Board (ABCB) and the Centre for International Economics (CIE) on 17 September. This supplementary information should be read in conjunction with our submission.
The time constraints during the online meeting of 17 September 2020 did not permit full discussion of important economic considerations associated with the Regulatory Impact Statement (RIS) or the qualitative study. Therefore, the following information is provided to assist CIE in their finalisation of their evaluation, and for the ABCB’s consideration of the results.
September 2020
Tags: for policy makers
Description:
Functional capacity is one of the key factors in determining eligibility for the NDIS. Functional capacity is the ability to be involved in different areas of life like home, school, work and the community and to carry out tasks and actions. It considers other factors in a person’s environment that may impact day-to-day life.
We want to see the NDIA take action to enable fast, fair and equitable decisions and these decisions need to be made with a strong evidence base. This requires NDIA funded and well-trained assessors who have experience working with people with disability.
Read our full position statement by clicking on the Download now button.
September 2020
Tags: for policy makers
Description:
This submission addresses the questions put forward in the Support Coordination Discussion Paper and highlights the need to improve the support coordination service model in a range of areas. These include ensuring access to adequate and timely support coordination; incorporating effective support coordination in the interface between the NDIS and mainstream health systems; support coordinators with specialist knowledge in housing for people with complex needs; easier access for participants to appropriately skilled and experienced support coordinators; encouraging innovation and the development of best practice approaches through training and development opportunities and Communities of Practice; and addressing conflicts of interests.
August 2020
Tags: for policy makers
Description:
The Melbourne Disability Institute (MDI) and the Summer Foundation are pleased to provide this submission in response to the Australian Building Codes Board (ABCB) Consultation Regulation Impact Statement (RIS). We have initiated three important pieces of research in response to the Consultation RIS, in order to further inform the ABCB and Ministers, viz: i) an independent review of the social cost benefit analysis; ii) a survey and interviews of people with disability that provide important new quantitative and qualitative data; and iii) an audit of accessible features in 20 new build, high volume house plans.
August 2020
Tags: for policy makers
Description:
The Summer Foundation is pleased to provide this submission in response to the Australian Building Codes Board (ABCB) Consultation Regulation Impact Statement (RIS).
The Summer Foundation endorses the stated objective of the RIS and proposes that it should include the word ‘all’: The objective of the regulatory proposal is to ensure that [all] new housing is designed to meet the needs of the community including older Australians and others with mobility limitations.
Summer Foundation maintains that accessible housing is for everyone, every time, every day.
It should not be regarded as ‘an optional extra’ or ‘for special people.’ The regulation of minimum standards of accessibility can bring significant benefits to the broader community and is in the public interest.
September 2019
Tags: nursing home, residential aged care (RAC), royal commission, submission
Description:
The submission identifies the key policy and systemic changes needed to stop young people being forced into aged care. It covers what needs to change and how it can happen.
The Summer Foundation welcomes the opportunity to contribute to the National Disability Insurance Agency’s (NDIA, Agency) consultation into Home and Living and the focus on person-centred supports, flexible funding and an ordinary life in the community. Our submission responds to the key themes in the consultation paper and makes recommendations to uphold human rights, increase participant choice and control, and build capability among people with disability, families and the disability sector.The proposed Home and Living Policy is a significant step towards securing better outcomes for National Disability Insurance Scheme (NDIS, Scheme) participants. A flexible and responsive Home and Living Policy is essential to stop younger people with disability being forced into Residential Aged Care (RAC) and to meet the outcomes outlined in the Younger People in Residential Aged Care ActionPlan.
The Summer Foundation is hopeful that the recommendations in this consultation paper will support the National Disability Insurance Agency’s (NDIA)Home and Living Policy to ensure participants are at the centre of their plans and are supported to live an ordinary life.