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Empowering perspectives: Insights from the National Disability Summit

Hi my name is Frances.

I’m a mature woman with a disability who is trying to live my best possible life, which has included working and travelling around the world. This has enabled me to work and be involved in some amazing projects. I’m also a carer for someone with a psychosocial disability.  

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Meet Suzie – she has been living with a brain injury for 20 years. She writes about her experience and explains why it is important for people to understand brain injury.

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Welcome to our latest newsletter.

It has been a busy few months at the Summer Foundation as we celebrate the launch of a new co-design project. The purpose of the project is to co-design resources to build the capacity of NDIS participants, providers and supporters so they can exercise better choice and control over their supports. 

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The theme for this year’s Annual Public Forum on Thursday 2 November is Transforming supports at home: Making it work for NDIS participants.

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The Summer Foundation has secured funding for an NDIS Quality & Safeguards Commission led project to build the capacity of NDIS participants. 

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An independent review panel was set up last year to look at the design, operations and sustainability of the NDIS.

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Brendon waited for 918 days to get the correct level of funding to continue living in his 1-bedroom specialist disability accommodation in Queensland.

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Xavier was stranded in hospital for 12 months after flying over the handlebars of his bike and breaking his spine, leaving him a quadriplegic.

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Since 2006, the Summer Foundation has been working to get young people out of aged care. Much of our work over the past 15 years has been around changing the systems that lead to young people with disability having to live in aged care. In recent months though, we have kicked off a new program designed to directly support young people living in aged care to explore alternative housing options.

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Summer Foundation researcher, Dr. Megan Topping, recently received her doctoral thesis examiners’ reports for her PhD thesis, “Treat You Like a Person, Ask You What You Want”: A Grounded Theory Study of the Quality of Paid Disability Support for Adults with Acquired Neurological Disability.

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The Summer Foundation and our social enterprise, the Housing Hub, host a range of face-to-face and online workshops for a wide range of audiences Australia-wide.

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“It is super important that the participants needs and wants are always at the forefront of the NDIA decision making”

Summer Foundation contributor and NDIS participant, Elizabeth Ratcliffe has participated in the NDIS Review. She says, “It’s critically important that the experts actually get this review right for the participants currently on the scheme and for the next generation of participants.” 

You can read the NDIS review report ‘What we have heard’ and share your views on their further questions here.


If you would like to share your experience, please contact us at: peersupport@summerfoundation.org.au

Check out our other stories from people with lived experience of disability here

Source: The Courier Mail – Judith Kerr

A Logan man has had a groundbreaking victory against the National Disability Insurance Agency after it tried unsuccessfully to kick him out of his one-bedroom unit and force him into a share house to cut costs.

Welcome to the June issue of our bi-monthly newsletter.

Featuring news about recent significant developments in our work to ensure young people stuck in aged care, or at risk of entering aged care, can make an informed decision on where they want to live.

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The Down to 10 Day campaign began campaigning in March 2022, advocating for faster, more accurate decisions on housing and support for NDIS participants.

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A day after the latest Federal Budget the Summer Foundation’s Dr George Taleporos interviewed the Minister for the NDIS Bill Shorten about what it will mean for people with disability.

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Ten researchers from the Summer Foundation participated in the Annual Brain Impairment Conference in Darwin.

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Tell us about yourself?

I’m almost 36, I have Cerebral Palsy. I enjoy doing diamond artwork, watching series on Netflix and I like to go shopping and meet friends for coffee. I’m a bit of a homebody sometimes.

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Short-term and medium-term accommodation (STA and MTA) for people with disability is in undersupply, according to the 4th edition of the Listings Snapshot report released by the Housing Hub.

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There are a number of myths associated with accessible housing that create barriers to finding the right home for people with disability.

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The Summer Foundation and our social enterprise, the Housing Hub, host a range of face-to-face and online workshops for a wide range of audiences Australia-wide.

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Source: The Australian – Sarah Ison | Photo: Martin Ollman

A coalition of disability organisations is warning the government is on track to fail its target of having no young disabled people in nursing homes by 2025 and has called for a clear plan to achieve the goal recommended by the Royal Commission into aged care.

Meet Maha, who recently joined the NDIS. Maha shares her experience and why she chose to make a submission to the NDIS Review.

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 Welcome to our new-look bi-monthly newsletter – Summer Foundation Focus.

While we may have a new name for our newsletter, our focus very much remains the same. We exist to get young people with disability out of aged care and into appropriate homes. 

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More than 10,000 younger people died in residential aged care over the past decade, new data shows.

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