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October 2022
‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: a scoping review protocol
Tags: community participation, disability support
Description:
Community integration and social participation remain a challenge for many individuals following acquired brain injury (ABI) and the transition from hospital to home is a complex journey. It is important to conceptualise this transition from the perspective of people with ABI, to inform future research with the overall aim of improving the experience of community re-engagement and maintaining important relationships within social networks. This article provides the protocol for a study that will review existing literature to support conceptualisation of community participation from those who have experienced the transition to the community following discharge from hospital.
Citation:
Currie, S., Douglas, J., and Winkler, D. (2022). ‘What’s next?’ The journey from hospital to community engagement from the perspectives of adults following severe acquired brain injury: A scoping review protocol. BMJ Open.
August 2022
Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers
Tags: community participation, complex support, disability support, NDIS participant, participant led videos, support worker
Description:
This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was piloted with five primary participants with acquired brain injury and cognitive and communication impairments, five close other supporters and five facilitators. Analysis of interview data revealed the PLV to be a person-centred experience for primary participants that was structured around sense of self and included having a voice and taking control in directing their lives, personal growth through participation and feeling validated through the experience. The production and use of PLV training resources has much potential to improve the delivery of support and maximise support outcomes by enabling people with cognitive and communication impairments to have choice and control, set their own goals and direct their supports.
Citation:
Douglas, J., D’Cruz, K., Winkler, D., Topping, M., Bucolo, C., & Finis, C. (2022). Development and preliminary evaluation of a novel participant-led video intervention to train disability support workers. Health & Social Care in the Community, 00, 1–12.
April 2016
The Community Integration Questionnaire – Revised: Australian normative data and measurement of electronic social networking
Tags: community participation
Description:
This paper has four aims: (i) develop and pilot items assessing ESN to add to the Community Integration Questionnaire, producing the Community Integration Questionnaire-Revised (CIQ-R); (ii) examine factor structure of the CIQ-R; (iii) collect Australian CIQ-R normative data; and (iv) assess test-retest reliability of the revised measure.
Citation:
Callaway, L., Winkler, D., Tippett, A., Herd, N., Migliorini, C., & Willer, B. (2016). The Community Integration Questionnaire – Revised: Australian normative data and measurement of electronic social networking. Australian Occupational Therapy Journal.
January 2016
Everyday choice making: Outcomes of young people with acquired brain injury after moving from residential aged care to community-based supported accommodation
Tags: community participation
Description:
This article examines the opportunities young people with acquired brain injury have to make everyday choices after moving out of residential aged care into community-based shared supported accommodation.
Citation:
Winkler, D., Callaway, L., Sloan, S., & Holgate, N. (2015). Everyday choice making: Outcomes of young people with acquired brain injury after moving from residential aged care to community-based supported accommodation. Brain Impairment.
December 2009
The community approach to participation: Outcomes following acquired brain injury intervention
Tags: community participation
Description:
This study investigates the participation outcomes of individuals with severe acquired brain injury (ABI) who were provided with up to 12 months of intervention based on the Community Approach to Participation (CAP).
Citation:
Sloan, S., Callaway, L., Winkler, D., McKinley, K., Ziino, C., & Anson, K. (2009). The community approach to participation: Outcomes following acquired brain injury intervention. Brain Impairment.
December 2009
Changes in care and support needs following community-based intervention for individuals with acquired brain injury
Tags: community participation
Description:
This article examines the care and support and participation outcomes for individuals with severe acquired brain injury provided with three consecutive years of Community Approach to Participation (CAP) intervention.
Citation:
Sloan, S., Callaway, L., Winkler, D., McKinley, K., Ziino, C., & Anson, K. (2009). Changes in care and support needs following community-based intervention for individuals with acquired brain injury. Brain Impairment
January 2006
Factors that lead to successful community integration following severe traumatic brain injury
Tags: community participation
Description:
This article aims to assess and identify predictive factors of community integration of people 3 to 15 years after severe traumatic brain injury (TBI). It finds that interventions that minimize challenging behavior and disability may make a significant difference to the level of community integration experienced by people with severe TBI.
Citation:
Winkler, D., Unsworth, C., Sloan, S. (2006). Factors that lead to successful community integration following severe traumatic brain injury. Journal of Head Trauma Rehabilitation
August 2005
Maintaining and developing friendships following severe traumatic brain injury: Principles of occupational therapy practice
Tags: community participation
Description:
This paper explores the role of occpational therapists, and describes principles of practice, in supporting and fostering friendships following traumatic brain injury.
Citation:
Callaway, L., Sloan, S., & Winkler, D. (2005). Maintaining and developing friendships following severe traumatic brain injury: Principles of occupational therapy practice. Australian Occupational Therapy Journal
April 2005
Time use following a severe traumatic brain injury
Tags: community participation
Description:
The aim of this study was to compare the time use of 37 people more than three years post injury with time use in the general Australian population. This time use study was part of a broader research project, which examined community integration and factors that lead to successful community integration. The results of this study were that the TBI sample spent less time in employment related activities and more time on personal care than the general population.
Citation:
Winkler, D., Unsworth, C., & Sloan, S. (2005). Time use following a severe traumatic brain injury. Journal of Occupational Science
May 2004
Community integration following severe traumatic brain injury: Outcomes and best practice
Tags: community participation
Description:
This paper examines traumatic brain injury (TBI) community integration outcome literature and selected theoretical models. It also describes a Community Approach to Participation (CAP), an individualised and collaborative model of community-based practice, which endeavours to address the poor outcomes identified following TBI.
Citation:
Sloan, S., Winkler, D., & Callaway, L. (2004). Community integration following severe traumatic brain injury: Outcomes and best practice. Brain Impairment