A+
large
A
small
invert
colour
Group 3
reset

Annual Public Forum 2022

The Summer Foundation’s Annual Public Forum was held on November 25, 2022. For the first time since 2019, we were pleased to host an audience in person, as well as online. The hybrid event saw almost 600 people join us online and close to 150 in person at The Arena, NAB Docklands.

Watch highlights from the forum:

Our panel of experts, made up of policy makers, sector experts and people with lived experience of disability were hosted by Beverley O’Connor (ABC News 24), and discussed what a reimagined NDIS might look like.

Bram Heinrich-McPartlan and Tobias O’Hehir brought the voice of lived experience to the discussion, with valuable insights into their own experiences navigating the NDIS. Importantly, they both highlighted the life-changing supports that their NDIS funding provided, while also sharing how complex the NDIS is, and how difficult it was to access and understand.

Tobia’s noted that his work as a lawyer helped him to recognise what was needed to put together an application that ensured he would get the funding package he needed, bringing into sharp focus that most do not come to the NDIS with this level of expertise. “Immediately I knew this was an evidence-based process, straight away… I came to it with a law degree and comms degree, and all of my professional experience, and I was able to get the information that I required, I was able to get the evidence that I required.”

John Dardo, Deputy CEO Partners, Providers and Fraud Taskforce Group, represented the NDIA and he was joined by Alecia Rathbone from the Housing Hub and Paul Simmons from Ability SDA, who added to the discussion from the perspective of sector and housing professionals.

It was widely acknowledged throughout the discussion that the NDIS is a young organisation with an enormous task, and while it is not where it needs to be, the organisation is committed to getting better.

John Dardo explained that the NDIA is working on both system improvements and immediate interface improvements to make the NDIS better now, and into the future. “But we also have to look forward and go, what do we need to keep focussing on at every level, to improve and be better next year, and in 5 years, then in 10 years.”

Watch the full recording:

Download the transcript

There were some fantastic suggestions for improvement from all our speakers. A key theme that emerged was improvements to workforce. For example, there needs to be more level 3 support coordinator funding, as well as funding for training for support coordinators so they can become the experts that they need to be. The implementation of NDIS in-reach roles within the hospital system was also needed so there are experts within the hospital system that can work with participants and support coordinators to get the best possible outcomes.

Suggestions for change within the NDIA included NDIS policy being separated from implementation, and a positive demand activation scheme, where the NDIA identifies participants who will likely be eligible for SDA. Paul Simmons explains, “the NDIA knows who is likely eligible for SDA, it wouldn’t be perfect, but they would cover it a lot better than the market would”.

The event concluded with a great sense of optimism for the future of the NDIS. For the full discussion – the range of barriers and possible improvements, watch a recording of the event above or download the transcript.

Speakers:

John Dardo – Acting Deputy CEO of the NDIA’s Partners, Providers and Fraud Taskforce group

John Dardo joined the NDIA on secondment in August 2022 as Deputy CEO of the newly formed Partners, Providers and Fraud Taskforce group. John is responsible for outward facing interactions with providers, partners in the community, the national contact centre and the recently formed cross-government Fraud Taskforce. John has a longstanding senior executive career in the public service, having previously worked at the Australian Taxation Office and Department of Education, Skills and Employment.

Alecia Rathbone – Chief Social Enterprise Officer, Housing Hub

Alecia Rathbone is the General Manager of Summer Foundation’s social enterprise the Housing Hub, that connects people with disability to appropriate housing. She is responsible for the development and growth of products and services of the social enterprise including the Housing Hub website, where people with disability can search for suitable housing by housing type or location, and the Tenancy Matching Service, which supports people with disability to apply for new property developments across Australia.

Bram Heinrich McPartlan – NDIS participant and SDA tenant

Bram lives with multiple disabilities in fully accessible specialist disability accommodation. Bram found accessing the NDIS a trial and it took multiple attempts to obtain the appropriate housing and supports in their plan. Bram now works casually, does disability advocacy and is grateful for the personal freedom and agency the NDIS has given them.

Paul Simmons – CEO, Ability SDA

Paul Simmons is a registered SDA provider that builds specialist disability accommodation. Together with his wife Angie, Paul founded Ability SDA in 2016 in direct response to the need for high quality SDA in NSW. Paul recognised an opportunity to support people with high physical needs by offering independent living solutions and a better quality of life. Today, Ability SDA has 45 accessible apartments with further developments in the pipeline. With a combination of industry experience in economics, finance, property, aged care and SDA, Paul is driven to build cost effective, beautiful, accessible spaces for vulnerable Australians.

UpSkill will continue to offer training and resources to support coordinators, allied health professionals and other sector professionals assisting people with complex support needs. Check out our upcoming courses for 2023. 

Online Webinar – Zoom
DATE:
Wednesday 30 November 2022
TIME: 11:00am – 12:30pm AEDT

This webinar brings together a panel of experts to discuss how we can better assist people who have behaviours that concern us.  In this webinar we will look at behaviour as a means of communication of unmet needs and how we can better support a person to live a meaningful life. 

People with disability who display behaviours of concern challenge us greatly. Often the response is restrictive practices to ensure the safety of the person and others around them. While often necessary, restrictive practices are a restriction on the person’s autonomy.  So how do we support choice and control and improve a person’s quality of life when they have behaviours of concern? What can support coordinators and allied health professionals do to assist with safety and safeguarding AND choice and control?

After attending this workshop you will have a better understanding of working with people who have behaviours of concern and how you can demonstrate leadership in supporting rights, choice and control and supported decision-making. 


The webinar is the 4th in our Supported Decision-making series and takes a rights-based approach to positive behaviour support and support for decision-making, with a focus on home and living situations. 


Join UpSkill and our panel of experts as we discuss:

  • Common reasons people may display behaviours of concern 
  • The link between positive behaviour support, human rights and improving quality of life
  • Function and alternatives to restrictive practices 
  • Strategies to support positive behaviour
  • Supporting self determination of people who have complex support needs
  • Role of support coordinators in supporting people who have behaviours that concern us 
  • How we can demonstrate leadership in upholding the rights of people with disability

Meet your panel:

Donna White – National Director Behaviour Support, NDIS Quality & Safeguards Commission

Donna has been working at the NDIS Commission for over four years in a range of behaviour support positions and commenced in the National Director Behaviour Support role in June 2021. Donna has worked in the disability sector for over 30 years and prior to commencing with the NDIS Commission worked in a Statewide Behaviour Intervention Service in NSW.

Donna is a certified practicing speech pathologist and has extensive experience supporting people with disability who have complex communication, behavioural, forensic, trauma and health-related support needs.  Donna has a Bachelor of Applied Science (Speech Pathology), Master of Arts (Communication Disorders) and a Graduate Certificate in Developmental Trauma. Donna is a published editor and author, and has presented at national and international conferences on issues related to clinical practice, intellectual disability, positive behaviour support and mental health.

Paul Jay – Self advocate and micro-entrepreneur

My name is Paul Jay, I am an independent person living in Fremantle. I am a music buff that enjoys live music, and a cafe connoisseur. I am also currently working on my own microenterprise that hopes to assist people like me to build the support network that is right for them.

Debbie LobbDirector of Professional Supports and Behaviour Support Consultant,  Microboards Australia

Debbie is a specialist behaviour practitioner and is known across the disability sector for her leadership roles in supporting organisations and families to understand the underlying needs and experiences of people with disability, particularly in relation to complex behaviour or communication needs. Debbie is regularly sought for her knowledge and experience in developing behaviour support models of practice and for her gentle supportive approach to partnering with people to go on a journey of discovery and support development.

Sally RobinsonProfessor of Disability and Community Inclusion, Flinders University

Sally does research with children, young people and adults with disability about what helps them feel safe, well and happy at difficult times in their lives. Most of her work is done in teams that include people with disability as researchers as well as asking them for their views. She also works with governments and organisations about how to listen to the things that matter to people with disability.

Who is this for:

  • Support coordinators
  • NDIS allied health professionals
  • Advocates

Any questions?

If you would like to know more about this webinar or UpSkill training, click here, or email: upskill@summerfoundation.org.au

“At first I said No!” – NDIS Chair Kurt Fearnley reveals all in this exclusive interview

VIDEO PODCAST: 25 October 2022

In this episode of Reasonable and Necessary, Australia’s leading podcast on the NDIS, Dr. George speaks with newly appointed NDIS Chair Kurt Fearnley. In this in-depth interview Fearnley reveals all about how he came to the role, his vision for the future of the NDIS and, with a bit of persuasion, he takes on some of your tricky questions.

You can download and listen to the audio version on SoundCloud, iTunes (Apple Podcasts) or Spotify.  

Download transcript

Latest episode

When NDIS services turn bad – Interview with NDIS Commissioner Tracy Mackey

VIDEO PODCAST: 11 October 2022

In this episode of Reasonable and Necessary, Dr. George speaks with NDIS Commissioner Tracy Mackey about what you can do if you are unhappy with your NDIS services, including how to deal with unregistered providers, and how you can make a complaint to the commissioner.

You can download and listen to the audio version on SoundCloud, iTunes (Apple Podcasts) or Spotify.  

Download transcript

The Summer Foundation would like to thank Selina Short for her service as a Director on the Summer Foundation board. Selina joined the Board on 17 November 2020.  

We wish Selina the very best and thank her warmly for her service to Summer Foundation. 

Latest episode

What does good NDIS support look like?

VIDEO PODCAST: 19 September 2022

In this episode of Reasonable and Necessary, Dr George speaks with Megan Topping (La Trobe University PhD research student) and Carl Thompson (NDIS participant and director of support coordination provider ‘Sort Your Support’) about what NDIS participants really want from support workers.

You can download and listen to the audio version on SoundCloud, iTunes (Apple Podcasts) or Spotify.  

Download transcript

It’s Brain Injury Awareness Week!
Meet James – he has been living with a brain injury for 18 years. He writes about his experience and explains why Brain Injury Awareness Week is important to him.


Hi, my name’s James. I’m 38 years old and I have an acquired brain injury. Before my brain injury I was a rugby league and cricket representative player. I was socially included, I had a heap of friends. 

After acquiring my brain injury, I found that people fell away. They heard that I had a brain injury and they were not willing to hang around to see how bad the injury is.

Many people hear the word brain injury and they look at you and think, ‘Oh they have a brain injury, they’re a lot worse than I am, they are not worthy of my time, they aren’t able to make clear decisions’. 

What would you like people to know about living with an acquired  brain injury?

I am not defined by my brain injury. Each and every day that passes my brain heals. In my mind, everyone has an injury of some sort to their brain. Everybody is different in their personality, in their way of thinking, in every brain function there is. I had a traumatic brain injury on the right side of my brain. Other people have challenges in other parts of their brain, brain injuries from years of neglect or brain injuries from psychological or physical abuse. 

Why is Brain Injury Awareness Week important?

It is important to show people that brain injuries don’t define people. 

The extent of a brain injury doesn’t determine or define the person’s life. People are so much more than this, this is what we need to look at, people as people. 

The theme of Brain injury Awareness Week this year is ‘Life is bigger than a brain injury’. What does this mean to you?

The brain injury is a small part of my life, I have so much more going on than a brain injury.  I have hobbies and am involved in community groups. I have completed a couple of TAFE courses. This would have been unbelievable to the support looking after me at the beginning of my recovery. 

I have also found new, more valuable friends.

The brain injury doesn’t define me, I make sure it doesn’t define me. I make sure I excel to prove to myself and others that the brain injury category is not the only category I am placed in. 

You can watch James Nutt’s digital story here. Find out more about Brain Injury Awareness Week here.

Source: Herald Sun – Jade Gailberger

Taxpayers are paying tens of millions of dollars for healthy patients who are stranded in Victorian public hospital beds due to a bureaucratic mess.

Read More

LATEST PODCAST EPISODE:

In research by the Summer Foundation and La Trobe University, participants revealed that their relationship with the NDIA needs repairing – most had lost confidence and trust in the NDIA. Many recognised that they can’t opt out of this relationship, so with the appointment of a new government, many participants are optimistic that the time may be right for an honest dialogue between all parties about the future of the NDIS. 

Outcomes and Experiences of People with Disability Moving into New Housing

What is the study about?

The aim of this research is to help us better understand the individual experiences and outcomes of people with disability who move into Supported Disability Accommodation (SDA) housing in the  community. This project involves collecting information from interviews and questionnaires with tenants and those close to them pre-move and at regular intervals up to 3 years post-move.

Why are we doing this study?

We are doing this research to find out more about the experiences and outcomes of people with disability who move into appropriately designed housing in the community. We are interested in finding out what works well for people and what could be improved so we can inform the development of future housing and services. Our research will document the lived experience and impact of new housing developments for young people with disability and help to shape innovative housing models in the future.

Who do we want to take part?

Taking part in this research study is optional. We are looking for people who:

  • Are aged 18-65
  • Have disability. Primary disabilities include (but are not limited to): Acquired brain injury, spinal cord injury, cerebral palsy, muscular atrophy, muscular dystrophy, multiple sclerosis, Huntington’s, other neurological conditions
  • Have an offer of an SDA house or apartment and/or have been living in SDA for up to 6 months
  • Speak/understand English
  • Have adequate communication skills to independently agree to participate. Adequate communication skills include using a variety of ways to communicate including verbal or written communication, verbal prompts, repetition and rephrasing of information or augmentative communication devices

You will be offered a $30 gift card for each time point you complete, as a reimbursement for your time. This will be provided after you complete the interview(s) for a time point. If you choose to withdraw from the study, you can keep the gift cards you have been given.

How can I get involved in this research?

If you are interested in participating in this study, please email Dr Peter Mulherin at peter.mulherin@summerfoundation.org.au or complete the form below.

A member of the Summer Foundation Research Team will then contact you to explain the project in more detail and, if you are interested in participating, arrange a time for an initial interview.

To be eligible to participate in the study, you will be required to be able to independently agree to participate. After written consent is obtained, you will be considered part of the research project. All the information you provide during interviews will be de-identified and assigned a unique code. 

  • By completing this form, you give us permission to contact you about potential research projects. It does not commit you to participating in specific projects, but is simply an expression of interest.
  • Having trouble completing this form? Please call us on 1300 626 560 or email us at info@summerfoundation.org.au
  • This field is for validation purposes and should be left unchanged.

Research Team

RoleNameRole
Chief InvestigatorProf Jacinta DouglasLa Trobe University
Co-InvestigatorDr Di WinklerSummer Foundation
Co-InvestigatorDr Kate D’CruzSummer Foundation
Co-InvestigatorDr Stacey OliverSummer Foundation
Co-InvestigatorDr Peter MulherinSummer Foundation
Co-InvestigatorDr Elroy DearnSummer Foundation
Co-InvestigatorJacqui NaismithSummer Foundation
Co-InvestigatorKatherine GanzonSummer Foundation
Co-InvestigatorFiona CareySummer Foundation
Co-InvestigatorNancee BivianoSummer Foundation

This research is being funded by the Summer Foundation and conducted with La Trobe University.

The Housing Hub wants to help people with disability find the right home. To do this, we want to make sure people have access to all the information they need. We host free events and online learning packages to help give people information about NDIS Housing Options.

In 2021 the Summer Foundation held a series of workshops and interviews with on-site support providers, specialist disability accommodation (SDA) providers, and tenants living in SDA apartments. Preliminary findings from the workshops were published in May 2022, and the main findings were that there is scope for service redesign and innovation to improve the quality and efficiency of support.

This discussion paper draws on the evidence provided by a series of workshops and interviews with on-site support providers, specialist disability accommodation (SDA) providers, and tenants living in SDA apartments.

It documents the perspectives of tenants, SDA providers and OSS providers on co-located single occupancy SDA. It looks at the key challenges and benefits, and identifies potential solutions to improve the consistency, quality and cost effectiveness of the disability supports delivered to tenants living in these dwellings.

We are seeking input from support providers for improving the preliminary report and recommendations. Please contact research@summerfoundation.org.au by 30 June 2022. 

Rachel speaks about her experience of waiting for SDA and the impact that it had on her life.

Read More

Dr George Taleporos is back with a new episode of Reasonable & Necessary, where he meets NDIS participant Leila Bowheen who has been stuck in hospital for almost a year, waiting for housing and support. We also talk to Adam Horsburgh, CEO at the Austin Hospital for his take on the problem and how it can be solved.

Why are so many people stuck in hospital waiting for NDIS decisions?

You can download and listen to the audio version on SoundCloud, iTunes (Apple Podcasts) or Spotify.  

Download transcript

Source: Disability Support Guide – Anna Christian

Thousands of people with disability are waiting far too long for approval for the housing they need, causing stress and impacting their health, the members of a new campaign say.

The Down to 10 Days campaign launched this week and aims to have the wait of up to 18 months for housing approval under the National Disability Insurance Scheme (NDIS) cut to ten days to protect the health and wellbeing of people with disability.

The Canberra Times – Dan Jervis-Bardy (Picture: Elesa Kurtz)

The Morrison government is under pressure to end the bureaucratic delays being blamed for confining NDIS participants to hospital beds or forcing them into aged care homes. 

A coalition of housing, health and disability groups has launched a pre-election campaign calling on the National Disability Insurance Agency to dramatically speed up decisions about funding for supported accommodation.

Paulene shares her experience of moving from aged care into her own SDA apartment in the Summer Foundation Annual Report.

In this episode of Reasonable & Necessary, George is speaking with Therese Clark from Barwon Health to find out how people with disability (PWD) can access free rapid antigen tests (RAT) through the Victorian Government Disability Liaison Officer service.

The Summer Foundation is pleased to support the Australian Disability Strategy 2021-2031. The Strategy, launched today on the Disability Gateway, prioritises the commitment to improve the lives of people with disability by all governments – Australian, state, territory and local.

Today is United Nations International Day of People with Disabilities. Today promotes understanding of disability issues and supports the dignity, rights and wellbeing of people with disability now and in the future. The theme of today is, “leadership and participation of persons with disabilities towards an inclusive, accessible and sustainable post-Covid-19-world”. 

Minister for Families and Social Services, Anne Ruston said ‘People with disability deserve to have the same as any other person and this ten year framework sets out our priorities as a nation for the 4.4 million Australians who live with disability’. The Australian Government is supporting the Australian Disability Strategy with an investment of $250 million.

The Strategy aims to improve the lives of people with disability across 6 priority outcome areas. 

  • Employment and financial security
  • Inclusive homes and communities
  • Safety, rights and justice
  • Personal and community support
  • Health and wellbeing
  • Community attitudes

The Summer Foundation focuses on supporting people with disability with complex support needs and works to ensure no younger person under the age of 65 is forced to live in aged care. The Australian Disability Strategy aims to increase the availability of affordable housing, ensure housing is accessible and that people with disability have choice and control about where they live, who they live with and how they live. Additionally, that people with disability can access the supports they need to live well, delivered in a way which best meets their individual needs. 

The rights of people with disability must be promoted upheld and protected. We are pleased to see this as a central principal of the Australian Disability Strategy. 

The Strategy re-establishes Australia’s commitment to people with disability and provides the vision for an inclusive Australian society that ensures people with disability can fulfil their potential, as equal members of the community. 

The Summer Foundation would like to see the implementation of the Strategy drive opportunities for people with disability, to lead and direct the achievement of outcomes, and play a significant role in shaping the success of the Strategy. The Strategy endeavours to facilitate greater community participation for people with disability and provide the opportunity to ensure they can decide how they live their lives. It is important that adequate funding continues to be provided to support the achievement of the Strategy over the next 10 years. 

Meet Jono. Jono’s journey to SDA has taught him you have to fight not only for what you require but also for what you deserve. Read about his housing journey in the Summer Foundation Annual Report.

Not-for-profit organisation, the Summer Foundation, has today launched the UpSkill Provider Directory, a searchable online directory of support coordinators and allied health professionals with the skills and experience to assist  people with complex support  needs to live well in the community.

The platform, made possible by funding partner Gandel Philanthropy, also provides eligible professionals with a way of showcasing their services to potential clients free of charge.

People with disability, families and others who assist them will be able to search the directory for National Disability Insurance Scheme (NDIS) support coordinators and allied health professionals in their area. 

Summer Foundation Head of Government Relations and Policy, Amelia Condi, said the UpSkill Provider Directory will enable NDIS participants with complex support needs to connect with a network of experienced support coordinators with the right skills to support participants to navigate the NDIS service system.

“Our focus for the UpSkill Provider Directory over the coming months is to build listings – it will continue to grow and evolve as more support coordinators and health professionals come on board,” Ms Condi said.  

The directory is the newest tool in the Summer Foundation’s UpSkill program, which delivers training,  capacity building and professional development to support coordinators and NDIS allied health professionals across the country. These professionals are integral in supporting people with complex support needs to achieve good outcomes and live well in the community.

Support coordinators and NDIS allied health professionals who have completed UpSkill training are eligible to create a profile on the directory. They are also eligible to join the UpSkill Community of Practice, a networking platform for members to troubleshoot barriers and inspire each other to think innovatively and share information, ideas and practices.

Gandel Philanthropy Chief Executive Officer, Vedran Drakulic OAM said: “From alternative housing demonstration projects to building workforce capability through UpSkill, the Summer Foundation has been at the forefront of innovative strategies to prevent younger people with disability from languishing in aged care.

“The UpSkill Provider Directory will offer vital online connections and supports so that every young person with disability can choose where they live and who they live with.”

Click here to access the UpSkill Provider Directory.

Source: Pro Bono | Author: Sabina Curatolo and Di Winkler

A new industry report on investment funds in the specialist disability accommodation market highlights the need for greater government oversight to increase investor confidence, write Di Winkler and Sabina Curatolo.