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Research Update

As part of the Summer Foundation-La Trobe University Research Programme, in recent months we have published several journal articles and reports, and presented at academic conferences. 

We’ve been looking at issues such as hospital discharge, accessible housing regulations, NDIA decision-making, support coordination, and the impact of living in SDA. 

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Individualised living arrangements are as unique as a fingerprint – at this recorded webinar we discuss how they can work to give people the opportunity to live the way they want.

At this webinar, you hear from Ned, who recently moved out of his family home and is living with 2 supportive housemates. You learn about Ned’s home, his living arrangement and learn about how NDIS participants and their supporters can get started with their own unique arrangements. 

Many people with disability need support to live independently in the community, but don’t want to live in a group home. At this webinar you can build your understanding of individualised living, learn how the principles of person-centred planning together with the opportunities of the NDIS help create a way forward.

This webinar was delivered live on Monday 11 October 2021. 

About UpSkill: UpSkill is a Summer Foundation program that offers professional development to support coordinators and NDIS allied health professionals so people with complex needs can be supported by skilled professionals to live well in the community.  Find out more at: https://www.summerfoundation.org.au/project/upskill/ 

About Housing Hub: The Housing Hub is a website that lists over 1,500 accessible houses, apartments and other properties that may be suitable for people with disability to rent or buy.  It is an initiative of the Summer Foundation. 

About Bridge It: Bridge It Homes Connect  – creative paths to safe, connected homes for people living with disability.

About SDA Information Sessions are being delivered online around Queensland and Western Australia to assist housing providers gain a better understanding of housing options available to NDIS participants including Specialist Disability Accommodation (SDA).

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The State Government recently changed its Hospital Visitor Directions to allow “a disability worker to enter or remain at a hospital for the purpose of providing a disability service to a patient with a disability”.

The change in policy came as a result of one of our storytellers, Sam Petersen working together with the Summer Foundation’s Policy Manager Dr George Taleporos, to drive change in this area.

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The COVID-19 pandemic has made feeling and staying connected more important than ever before.

Our new Staying Connected web page is providing the opportunity for people with disability to share their stories.

You can visit the webpage to find out more here.

Summer Foundation storyteller Michelle has welcomed the opportunity to spend quality time with her family and to learn something new.

COVID-19 hasn’t really impacted me in a bad way and has actually been a lovely opportunity to spend quality time with my family. I have really missed my support workers though,” Michelle said.

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Source: NorthWest Telegraph | Author: Alexander Scott

A series of workshops is set to be hosted in the North West to help people with disabilities and housing providers better understand the opportunities opened up by the National Disability Insurance Scheme.

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*This article appears on page 5

Source: Pilbara News | Author: Alexander Scott

The National Disability Insurance Agency has flagged a new strategy to reduce the number of younger people in nursing homes, conceding more work is needed even as figures show a slight fall in the December quarter.

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*This article appears on page 5

The publication earlier this year of Kim MacIntosh’s book “Full Circle – Overcoming Disability through Faith” is just the latest in an impressive list of life goals achieved by the Summer Foundation storyteller.

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In 2009 Penny suffered a stroke. Four years later a motor vehicle accident caused further injury.

Through her NDIS plan Penny was funded for home and car modifications, support hours and equipment.

Her first plan increased her independence and social interactions – she says:[it was] a good package and opened up my world. I felt liberated.

However, at subsequent reviews items were removed. Penny’s informal supports had also broken down in the meantime and despite needing additional support hours, her package was reduced. Getting less support at home resulted in more frequent hospital admissions
for Penny.

Penny has been forced to pay for the community nursing and items not covered by health or disability funding out of her own pocket, which means less money for food and other essentials.

Penny has worked in the disability sector for a number of years, so is well informed and has a good understanding of the sector, but she too has had to work tirelessly to navigate the health and disability systems.

Penny will be speaking about her discharge experiences with the NDIS at the upcoming Annual Public Forum
on October 11.

The NDIS is still working out what is reasonable and necessary for people with disability and complex needs. Difficulty accessing appropriate health supports is one of the reasons young people are admitted to aged care.

So we were pleased with the decision by the Administrative Appeal Tribunal (AAT) in relation to Mazy v. the NDIA. Mazy requested the provision of care by a registered nurse to administer regular insulin, which was declined by the NDIS. After an internal review, Mazy took her case to the AAT. The AAT found that it was a reasonable and necessary support for a registered nurse to administer her insulin (in accordance with s 34(1) of the National Disability Insurance Scheme Act 2013 (Cth)). For details of the decision: http://www.austlii.edu.au/cgi-bin/viewdoc/au/cases/cth/AATA/2018/3099.html

If you need access to nursing care to live well in the community you may want to print this decision to take to your planning meeting. Or, if your plan does not meet your needs, consider seeking advocacy support to request a review. To find an advocate see https://disabilityadvocacyfinder.dss.gov.au/disability/ndap/

Source: Sydney Morning Herald | Author/Editor: Rachel Lane

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