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Summer Foundation Focus – May 2025

Welcome to Summer Focus.

This month, Australia re-elected the Albanese Government for a second term. We congratulate the Hon. Mark Butler for his appointment as the Minister for  Health and Ageing, Disability and the National Disability Insurance Scheme (NDIS) and the Hon. Jenny McAllister for her appointment as Minister for the NDIS. We look forward to working with them to continue to reform the NDIS so it delivers for people with disability.

A key focus for this term will be the co-design and implementation of the support needs assessment, flexible budgets and foundational supports. This work is critical to delivering fair and consistent access to NDIS supports as well as timely and high-quality supports for people receiving supports outside of the NDIS.  

Equally important is the urgent need to expand housing and support options for people with disability who have high support needs. The Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability exposed the violence, abuse and neglect occurring in group homes and recommended they be phased out.

Beyond the human cost, group homes are also placing significant financial pressure on the NDIS—costs that are projected to continue to rise in the years ahead.

At the Summer Foundation, we are exploring a range of high potential solutions that will deliver better outcomes for people with high support needs. We’ll soon release our first policy report under our new mission and purpose, outlining a national strategy to grow Individualised Living Arrangements across Australia. 

This month, Focus also takes you behind the scenes on our recent photography shoot with the people we work with, including a special interview with one of our stars – Meghan Kyne.

In this issue, you’ll also read an article on our recently published study to understand the experience of family members supporting people with disability moving into Specialist Disability Accommodation. 

We have also included a link to our most recent podcast with NDIS Quality and Safeguards Commissioners Louise Glanville and Natalie Wade. 

Enjoy the issue.

Di Winkler

View all articles in this issue

Lights, camera, action!

Come behind the scenes on the Summer Foundation’s recent photography shoot, as we refresh our visuals and feature greater diversity on our website, social media and publications. Our vibrant new imagery captures people with disability in their homes and communities, thriving and doing what they love, and we couldn’t be more excited to share it with the world.
Read More

From “toothless tiger” to “formidable” regulator: Is this a new era for the NDIS Quality and Safeguards Commission? 

In this latest episode of Reasonable & Necessary, Dr George Taleporos brings us an exclusive interview with NDIS Quality and Safeguards Commissioners Louise Glanville and Natalie Wade. Louise and Natalie deliver a powerful call to action for the safety, rights and dignity of people with disability. They also discuss the future of the Commission and the impact of upcoming changes to NDIS regulation.
Read More

Tell us a bit about yourself. 

My name is Meghan and I’m 38 years old. I live in my home in Melbourne with my housemate Isobel. I work at an op shop on Monday, Wednesday and Thursday. I also like going out and meeting my friends at Escapades (a Milparinka-run activities program). My favourite things to do are going bowling, swimming and picnics. I love fashion, and my support worker Milly and I are going to cut and change some of my t-shirts.

Recently, you took part in a photo shoot for the Summer Foundation. What was the experience like for you? Did you have fun? 

Yes I liked it – I want to do it again next year. It was fun pretending and I liked having photos at my work, the op shop. The op shop workers were excited.

Was anything hard or tricky during the photo shoot? How did you handle it? 

It was a bit tricky when I was holding the glasses and crockery waiting for the photos to be taken. I was pleased I didn’t break anything. It was good to show how to use the pricing gun.

The photos look great! How was it working with the photographer and videographer? 

Fantastic, it was a good experience. Yes, it was fun, they were all nice people.

Do you like how the photos turned out? How do they make you feel?

Yes, I liked Milly my support worker walking with me, that was my favourite photo.

I felt fantastic seeing the photos, I did a good job. I like the photos and people can see what my life is like.

In the February issue of Summer Focus, we introduced new resources from the Housing Hub for helping people navigate NDIS housing issues. These resources, which were co-designed by NDIS participants, providers and supporters, have helped people learn about their tenant rights, give and receive feedback, and understand where to go for more help when accessing supported living arrangements. 

To ensure participants get the most out of these resources and know how to put them into practice, the Housing Hub is hosting a series of free online workshops across May.

Upcoming workshops will cover topics like: 

– Service Agreements – what am I signing?

– How should shared support work in my NDIS Housing?

– Who is responsible for what in my NDIS Housing? 

Learn more and register

They say a picture is worth a thousand words – and what better way to highlight the opportunities the Summer Foundation wants people with disability to have than through a broader range of images of lives in communities. 

Over the last few months, our Co-Design Team worked with six people with disability living in a range of different housing types including Specialist Disability Accommodation (SDA), Individualised Living Arrangements (ILA) and private homes.

Our stars invited us into their homes, workplaces and lives. Here are just some of the things people showed us they loved…

🎨 Ned showed us around his work and art studio. 

🏋️‍♀️ Kirby brought us to the physio and taught us her workout routine. 

🐞 Leanne shared her love of ladybirds and some fruit from the market with us. 

🎳 Nick showed off his house and his bowling skills. 

🐶 Anna took us for a stroll around the neighbourhood with some of the dogs she walks, before hosting a delicious lunch.

👗 Meghan let us sit in on a shift at the op shop, then showed us her homemade cookbook. 

All the people we worked with loved being movie stars for the day. Meghan had a ball posing for our photographer and videographer to get ‘the shot’, while the artistic Ned took a keen interest in the camera gear. 

The experience was also a memorable one for Gina Fall, Co-Design Curator, and Jodie Gallacher, Videographer/Digital Editor, from the Summer Foundation. “From my perspective, it was really fun to be part of their lives for a day. They were great stars,” Jodie says.

Look out for more pictures and videos on our website, social media, and our published work. 

For more behind the scenes stories, read our interview with Meghan

All talent were paid for their time and efforts and have consented to their photos being used by the Summer Foundation.

More Australians with disability are choosing individualised housing options over group homes.  Current projections estimate that 36,000 people will be eligible for NDIS funding to live in Specialist Disability Accommodation (SDA) housing by 2042. 

The move to individualised housing is an exciting and challenging time of transition. The Summer Foundation undertook a study to understand the experience of family members supporting people with disability moving into SDA. We conducted interviews with twelve family members who shared their valuable insights into this transition experience. 

As an invaluable source of caring know-how, family members can play a key role for people with disability in their move to individualised housing. Supporting family members to share their knowledge and navigate this period will help leverage this know-how and set up new independent living arrangements for success. 

Next steps for this project include working with families and NDIS participants to explore, prioritise and co-design information for, and by them, to better prepare for and support the transition to individualised living.

Read more about the study.

On February 20 our Head of Policy, Communications and Systems Change, Jessica Walker attended the NSW stakeholder meeting on increasing accessible housing in Sydney.  

Following this, the Summer Foundation made a submission to inform the NSW approach to the adoption of the Livable Housing Design Standards (LHDS) in the National Construction Code (NCC) 2022.

Consistent with the NSW Building Better Homes campaign position, the Summer Foundation supports the adoption of the LHDS with reasonable exemptions. We believe this represents a reasonable and pragmatic approach for NSW to join the rest of the nation in delivering  accessible housing in all new builds.  

Research finds that there is a 60% chance that any home will house someone with a disability during its lifespan. In the context of Australia’s housing crisis, we must future-proof housing stock for all Australians by ensuring all new houses meet minimum accessible design standards – things like a step free shower and level entry to the home. 

Both the Disability Royal Commission and the NDIS Review called for immediate nation-wide adoption of the LHDS in the NCC. Australia’s Disability and Age Discrimination Commissioners recently echoed this position.

By joining the rest of the nation in adopting the LDHS, the NSW Government can ensure its housing meets the needs of current and future generations.

Read the full submission

A recent investigative report on a series of horrific incidents of violence and abuse in group homes was shocking. But nothing new.

This report is just the latest in a long line of reports and inquiries that show that group homes are often unsafe. Where residents have little or no say over who they live with, their daily routines or how they receive essential supports.

And each time, we follow a predictable pattern. People express outrage and concern. The government promises to crack down on bad providers. But nothing is done to address the root cause of the issue: when people with disabilities are isolated and not included in the community, they are at greater risk of harm.

In 2023, the Disability Royal Commission revealed harrowing evidence about violence, abuse, neglect and exploitation in group homes. Only months before, the NDIS Quality and Safeguards Commission’s Own Motion Inquiry found more than 7,000 serious incidents were reported in a sample of seven of the largest disability group homes providers over a four-year period.

This is not a question about insufficient funding in the disability housing and support system.

Quite the contrary. Providing support to people with high housing and living support needs is costing the taxpayer $15 billion a year. Yet this investment is not delivering the quality of support people need to live dignified lives where they are included in their local community.

For this systemic violence and abuse to stop, the federal government needs to invest in a range of alternative housing and living options. Government must then commit to stopping the flow of people into group homes once and for all. 

The National Disability Insurance Agency’s attempt to stimulate more contemporary living options through a specific funding stream (individualised living options) has failed. Government’s lack of commitment to growing these options is demonstrated through the lack of indexation for this stream of funding since it was established in 2019. This is in stark contrast to the treatment of Supported Independent Living, the stream used to fund group homes, which increased by 28% over the same time period.

Australia lags behind other OECD countries in providing more inclusive and contemporary housing and living options, despite us paying more per capita in equivalent disability support. The United Kingdom, parts of the United States and Canada for instance have successfully implemented inclusive housing and support for people with disability.

The UK now has about 10,000 people in Host arrangements, where a person with disability is matched with a carer who has a spare room in their house. The person with disability shares in the Host’s life, family and community. These arrangements can save the UK government between $16,000 and $61,000 per person per year compared to supported living and residential care. This costs significantly less than the supports provided by group homes through the NDIS (average cost of about $350,000 per person annually). And, it’s safer, with ninety-one per cent of people living in ‘shared lives’ arrangements reporting feeling more involved in their community.

These arrangements exist at a small scale here, particularly in Western Australia. Perversely, while innovations such as these were meant to grow under the NDIS, they have stalled.

The government’s continued lack of response to the Disability Royal Commission recommendation to phase out group homes over a 15-year period will only result in more people with disability being subject to violence, abuse and neglect.

People with disability deserve more choice in how and with whom they live. Taxpayers should also demand better quality services delivered with their tax dollars.

There is enormous potential to grow more contemporary models of housing and living in Australia but more must be done. Shared lives arrangements, apartment living in mixed developments and flexible supports (such as key ring and drop-in and on-call) should all be part of the solution. Existing providers need support to continue to deliver these arrangements and new providers need to be encouraged to enter the market. We need strong market stewardship from the government to grow more bespoke, individualised arrangements for people with disability.

Both sides of politics should commit to an action plan aimed at growing alternative housing and living options and stopping group homes being the de facto solution for people with high support needs. This will address the serious incidents of violence, abuse and neglect happening daily across the country in group homes. Most importantly, people with disability will have better, more affordable alternatives that are safeguarded by strategies that work for all of us: deep relationships, friendships and connections to their community.

Dr Di Winkler AM
CEO, Summer Foundation

In this latest episode of Reasonable & Necessary, Dr George Taleporos brings us an exclusive interview with NDIS Quality and Safeguards Commissioners Louise Glanville and Natalie Wade.

Louise and Natalie deliver a powerful call to action for the safety, rights and dignity of people with disability. 

They also discuss the future of the Commission and the impact of upcoming changes to NDIS regulation. 

This exclusive joint interview covers: 

  • The Commission’s reform agenda and push for new legislative powers
  • Mandatory registration of key NDIS services
  • Protecting human rights through regulation
  • Balancing quality, safety, and participant choice and control
  • The importance of co-design and centring lived experience of disability
  • The significance of disability leadership within the Commission

For NDIS participants, family members and providers alike – this is an episode you won’t want to miss. 

Listen now on Reasonable & Necessary, available on YouTube, Soundcloud, Spotify, and Apple Podcasts. Don’t forget to like, subscribe, and share your thoughts in the comments!

Download transcript

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