The NDIS funds three levels of support coordination, a really useful service for YPINH when assistance from family is not their preferred option, or is not available. A coordinator of supports can assist NDIS participants to choose and manage appropriate service providers.
Vivianne has fond memories of her Uncle Les growing up. They were close in age, and Vivianne would happily join Les on canoeing and water-skiing trips.
Huntington’s Disease ran in Uncle Les and Vivianne’s family, but Uncle Les could not bring himself to take the test until he was almost 50. He was shocked when it came back positive. By the time he reached his early sixties, Les was forced to move into a nursing home.
In their digital story, Vivianne and her husband (also named Les) recount their journey of connecting Uncle Les with the NDIS, and the difficulty of making decisions on behalf of a loved one.
Evelyn is a 54 year-old woman, keen collector of Cornishware, a loving mother of three and wife of Russell for 32 years. The family live in the Barwon region of Victoria, one of the NDIS trial sites. Soon after Evelyn suffered a stroke in 2011, she was discharged into an aged care nursing home.
Currently there are over 6,200 people under 65 years of age living in nursing homes across Australia (YPINH). Most will be eligible for the NDIS. The Summer Foundation has complied a report on its work with YPINH in the Victorian and NSW trial sites on the benefits to date of participating in the Scheme. We know that many YPINH have few or no social supports and the majority aren’t connected to existing state based disability services. We are working both with YPINH to support their NDIS participation and with the National Disability Insurance Agency (NDIA), the agency responsible for implementing the NDIS, to ensure the scheme is accessible.
The Summer Foundation was pleased to launch three new publications in 2015 which document the learnings from our housing demonstration projects.
The Summer Foundation received some fantastic media coverage in 2015. As a thank you to the supporters and journalists involved, we will be featuring this coverage on our website over the coming months.
Families, in all their diversity, provide the overwhelming majority of care and support to people with disability. For many people with disability, a good life is built on the foundations of social and economic support from a family that is functioning well. That is, a family able to communicate, make decisions, solve problems and maintain relationships. The National Disability Insurance Scheme (NDIS) recognises the current rationed and crisis driven state based disability systems undermine families by forcing members to leave paid employment to provide care.