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Q: What has been your biggest concern during the COVID-19 pandemic?

Staying COVID-free mainly… Especially in a household where we have support workers coming and going. Luckily I have a great team of women supporting me who understand that keeping me safe means keeping themselves and their families safe too. As long as everybody is doing their part to do that, we can prevent the spread amongst ourselves and our loved ones.

 

Q: Why is having easy access to PPE important to you?

I think it should be important to everyone… In saying that, people with disability have no choice but to expose themselves to those who cannot isolate.

Personally, I have gone nowhere and have fully accepted and abided by the restrictions, however that does not mean I am not in close proximity with my support workers. These workers go home to their families and need to do their own grocery shopping and mingle within crowds and could possibly come into contact with the virus. I trust my workers, but with limited PPE, it’s difficult for me to provide them with the resources needed to protect themselves, which in turn protects me as well as their loved ones. This makes the hope of ‘flattening the curve’ even more difficult.

I personally have been forced to use my NDIS funding to send support workers out to find supplies like we’re in a post-apocalyptic world. As such, I have attempted to access, and have thoroughly exhausted, all avenues in which to find the PPE I require to keep myself and my staff safe.

Q: As restrictions are eased around Australia, many are starting to enjoy the freedom they had prior to the COVID-19 pandemic. The reality for many people with disability is that they will remain in isolation until a vaccine is available. Will you continue to self-isolate until a vaccine is developed and why?
Yes I will. I do not trust that everyone is doing the right thing so I personally will continue to self-isolate. I can see further cycles of the virus breaking out should our country not continue to do so. I believe it’s too early to come out of isolation and further believe that more needs to be done to ensure there are enough supplies for everyone, especially people with disability, the aged and all those who are most vulnerable.

Q: Do you feel you will have an ongoing need to source PPE?

Most definitely. I need it every day for daily life, not just to protect myself and my family and my workers from COVID-19. They are staples in our world and they are so hard to access! That goes for all people with disabilities. Furthermore, all of the big disability consumable suppliers have been out-of-stock which has put all our health, our lives even, at risk.

Q: What has been your biggest concern during the COVID-19 pandemic?

My biggest worry is getting COVID-19, because I have no idea and no control over who people who come into my home are mixing with outside my home. I worry someone will have come into contact with COVID-19 and then I will get it. It was really difficult to get masks, gloves or hand sanitiser.

 

Q: Why is having easy access to PPE important to you?

Because it hard to access anything especially PPE. PPE protects me from catching COVID-19 and I feel safer when people are at least wearing masks when they are in close contact with me.

Q: As restrictions are eased around Australia, many are starting to enjoy the freedom they had prior to the COVID-19 pandemic. The reality for many people with disability is that they will remain in isolation until a vaccine is available. Will you continue to self-isolate until a vaccine is developed and why?
I don’t mind being in my home, because I am safe and I keep in contact with friends and therapists via the internet.

I would like to stay home, but it might not be convenient because I want to get back to gym and volunteering at my school so I can get back to work, which was on the cards before the the Corona virus put my life on hold.

It scares me a bit to go back out into the community though.

Q: Do you feel you will have an ongoing need to source PPE?

Yes, because as people venture out and mix with more people, there will be a greater risk of COVID-19 spreading back into the community and so more risk of contracting COVID–19. I need my support workers to use PPE to ensure I am as safe as I can be.

Recommendations released today, 20 January 2020, following a review of the National Disability Insurance Scheme (NDIS) by independent expert Mr David Tune AO PSM, should unlock the benefits of the scheme more quickly and provide certainty for those trying to access it.

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The Summer Foundation Board is extremely pleased to announce the re-appointment of Dr Di Winkler as CEO of the Summer Foundation. Di is founder of the Summer Foundation, and was CEO from the organisation’s inception in 2006 until early 2018.

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34-year-old Sam Petersen lived in a nursing home for 2 years. Source: SBS News, Jennifer Scherer

Source: SBS News  | Reporter: Jennifer Scherer | Photo: SBS News

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The Summer Foundation has lodged its submission to the Aged Care Royal Commission.

The submission identifies the key policy and systemic changes needed to stop young people being forced into aged care. It covers what needs to change and how it can happen.

Our 12 recommendations are based on our extensive work with young people in aged care and with providers in the health and aged care sectors.

The people whose stories we used to illustrate the realities of living in aged care were selected from 95 young people who participated in one-on-one conversations with us.

Download here
 

People with disability in hospital and aged care now able to move home with support from the NDIS.

The Summer Foundation welcomes the decisions made on Friday by the Council of Australian Governments (COAG) Disability Reform Council for the NDIS to fund a range of disability-related health supports.

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The Summer Foundation’s very own Dr George Taleporos is back with a third series of his popular podcasts – aimed at helping you make sense of the NDIS.

Back by popular demand, Reasonable and Necessary with Dr George: Making Sense of the NDIS is available to listen to on iTunes or SoundCloud. There are five half-hour episodes in this third series, which cover topics such as how the NDIS can work better and how it can support people with complex needs. We also hear some fantastic insights about Specialist Disability Accommodation (SDA) from industry insiders, as well as a unique Q&A with the NDIA.

The podcasts are about simplifying the NDIS and helping participants, their families and anyone else involved in supporting NDIS participants to be able to work their way through a new and complicated process.

Series 3

EPISODE FIVE: 12 APRIL 2019

Q&A with the NDIA – featuring Maryanne Diamond AO, General Manager, Community Linkages and Engagement at the National Disability Insurance Agency

get it on itunes read transcript

Previous episodes of Reasonable and Necessary with Dr George are available here. Full transcripts of each podcast are also available.

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