Vivianne has fond memories of her Uncle Les growing up. They were close in age, and Vivianne would happily join Les on canoeing and water-skiing trips.
Huntington’s Disease ran in Uncle Les and Vivianne’s family, but Uncle Les could not bring himself to take the test until he was almost 50. He was shocked when it came back positive. By the time he reached his early sixties, Les was forced to move into a nursing home.
In their digital story, Vivianne and her husband (also named Les) recount their journey of connecting Uncle Les with the NDIS, and the difficulty of making decisions on behalf of a loved one.